The Whole You: Lessons Learned After Moving from Nurse to Patient

Best-selling author Hollye Jacobs, RN, MS, MSW, blogs about three lessons she learned after she was diagnosed with breast cancer. Join us for our Annual Fall Conference, part of Wellness Weekend in Denver, CO this September 18-20 to meet Ms. Jacobs, to hear her speak and get a free copy of The Silver Lining Companion Guide in your conference goodie bag at registration for the event. 

As a healthy, happy, vegan-eating, marathon-running, 39-year-old young mother with absolutely no family history of breast cancer, being diagnosed with the disease in 2010 literally shattered my world. As a health care professional, I very quickly moved from the side of the hospital bed into the hospital bed.  This transition from nurse to patient taught me profound life lessons.


Lesson #1: Honor the feelings and let them out.

Prior to my experience with breast cancer, I was a grin-and-bear it kind of girl who was reluctant to share any feeling other than joy. However, once ‘Roid Rage (the intense feelings of anger brought on by pre-chemotherapy steroids) and Chemo-Sobby (tears at the drop of a hat brought on by the chemotherapy flowing through my veins), and the Freight Train of Fatigue (courtesy of the rads of radiation beamed into my body) entered my life, I had no choice but to let all of my feelings out. I was too exhausted to muster the energy to make them look “pretty.” And you know what? Expressing feelings, all feelings, happens to feel good. Really good. Though I no longer have ‘Roid Rage, Chemo-Sobby or the Freight Train of Fatigue (thank goodness!), I continue to openly express my feelings. And it still feels good! No, actually, it feels great! Continue reading

The Whole You: Meditation, Yoga and Breast Cancer

In this post for our Wellness Weekend series, The Whole You, Ayanna Kalasunas writes about how meditation and yoga helped her after she learned she had metastatic breast cancer. Understand how cancer impacts you physically, emotionally and spiritually during Wellness Weekend, taking place September 18-20 in Denver, CO.

Let’s face it – hearing “you have cancer” is one of the scariest moments of anyone’s life.  A metastatic breast cancer diagnosis two and a half years ago on the day I was set to start chemo was downright earth-shattering.  I, like many others, asked myself “how the hell am I supposed to handle this?” Having battled depression and anxiety in the past, I was truly concerned about the coping mechanisms I would need. I felt lost, angry, afraid and hopeless.

Then I thought about my mother. She too had been diagnosed metastatic after a stage II battle seven years earlier. She maintained a zest for life and continued to be the life of the party despite various bouts of chemo, radiation and multiple surgeries. She had cancer and I was aware of that but she was so much more than her disease.  My now husband once commented about her saying “I honestly forget that she is sick. Not in a bad way…she is just so fun and happy all the time.” Thinking about this reminded me that I could do it, too.

I was also very lucky to have a few close friends that used meditation and yoga as part of their regular routines. Part of their support as caregivers was offering information and resources regarding meditation, mindfulness, acupuncture and other complimentary therapies to my medical treatments, which I continue to pick up along this journey. Each one has grounded me and brought me to a life that is filled with hope, positive thinking and empowerment.


I did not morph into this person overnight. I read a few articles here and there, followed some inspiring people on social media, went to a yoga class with a friend here and there and spent a few Sundays super-souling on my sofa with a cup of coffee. I tried some mediation challenges and apps and slowly have found a sense of power in each of these moments.  I learned that I am in fact in complete control. Cancer is in my body so yes, it is real, but I am not my circumstances. Continue reading

Why I Became The Choosy Chick

In anticipation of our August 12 webinar on environmental health, Health Educator Margot White blogs about why she founded The Choosy Chick.

I have always believed in the benefit of leading a healthy lifestyle, but becoming a mom inspired me to turn it up a notch.  Like most parents, I wanted to provide my children with a healthy foundation and protect them from chemicals that did not belong in their bodies.  After my first son was born I began to realize I was only scratching the surface.  I had a lot to learn about food additives, dyes, artificial flavors and sweeteners, preservatives and chemicals with unpronounceable names.   The more I learned, the more I distrusted the well-known brands that were a major part of our diet.  My kids even picked up on my new habit.  Imagine my embarrassment when my 6 year old blurted out at a birthday party, “Hey Mom, there’s high fructose corn syrup in these fruit snacks!”

By the time my second and third sons came along, I began to learn about the chemicals not just in foods, but in cleaning and personal care products. I became more suspicious about toxins in skincare products when my son became ill during the application of one of those Halloween face painting kits.  His throat started to burn and he vomited white foam.  When I looked at the back of the product label, I noticed the warning to avoid using certain colors near the eyes or mouth.  But wait – this was a FACIAL makeup kit!  How could it possibly create this kind of reaction?mwhiteheadshot2

All along I was experiencing some unexplained rashes, and developed Raynaud’s syndrome.  My doctor started to watch me closely for Lupus, among other autoimmune diseases.  During that same period several close friends and family members were diagnosed with cancer.  I became concerned for the health of my family and myself. I became a mom on a mission committed to reducing our exposure to toxins in foods and household products. I started to investigate the ingredients in diaper creams, lotions, and baby shampoo and again, found good reason to distrust the brands I once thought were safe. I had already discovered that my own makeup and personal care products were loaded with toxic chemicals that are linked to a variety of serious health concerns. Continue reading

Listening to Your Inner Voice, Speaking Up to Address Your Fears

Contributor Joanne Hampton blogs about the importance of speaking up about your concerns and sharing them with your healthcare provider.

I moved from New York to Florida 6 years ago and on a recent visit to NY I was compelled to visit my oncologist. I was diagnosed with breast cancer at the age of 33. My children were 2 and 5 at the time, the ages where mommy isn’t allowed to be sick. I didn’t know anyone who had breast cancer. I was so alone and scared. I didn’t know what any of it meant or what to expect. This was 11 years ago when I felt it was shameful to say breast cancer and the internet offered little information. What I did know was I had two beautiful children who needed their mom.

Dr Buchholtz

Joanne Hampton with her oncologist, Dr. Buchholtz.

I put my life in the hands of my oncologist, Dr. Michael Buchholtz. He took me into his office for over an hour and explained as much as he could to me. Looking back, I remember the sweet tone of his voice and his kind and positive words. He made it easy for me to understand what was going to happen and what to expect. I realized I wasn’t alone and I wasn’t so afraid. He gave me that. I knew he wasn’t going to give up on me and I was going to be ok. I don’t know how else to explain it except to say I could feel his heart, as strange as that may sound.

If you have gone through chemotherapy, or if you haven’t, it’s a place we visit so often for treatment, blood work, follow up, shots, and if I have forgotten anything else, I’ll just blame it on chemobrain. In an odd way, the treatment center becomes almost like a second home, but a positive is you’re on a first name basis with almost everyone in the office. I remember one day when I was having an especially rough time, Liz, one of the nurses, was kind enough to go out to her car and brought me a CD of soothing music and some headphones. It was small gestures and support like this that made a difficult experience a little more bearable.

Finally, treatment, surgeries, and radiation were over, and I was a few months out when I felt that I heard a whisper. This whisper gave me the feeling that something was wrong and I wasn’t going to see my children grow up. I shared this feeling with a friend who said that after the scare and all I had been through, it was a normal fear to have. Family members felt it was time for me to close the book on cancer, put it behind me and move on. All this seemed reasonable. I had been through a lot. It was normal to be afraid, and it was over so I should be moving on.

But the whisper continued. Was it my own fears? Was it intuition? Or was it a message from a higher place warning me? Honestly, that is what I felt–that someone up there was trying to tell me something. You can imagine how crazy I sounded when I told people, and trust me it was only a select few.

When it came time for me to return to my oncologist for a checkup, all tests showed I was perfectly fine. Before he left the room Dr. Buchholtz looked at me and asked how I was feeling. I paused and I thought, well, he might put me on some loony meds, but I had to tell him about my concerns. I said, “This might be crazy, but I am having this feeling that something is still wrong and I am going to die young.”

He looked into my eyes and told me I was not crazy. I wish I could remember the exact words he used, because it was beautiful. He told me about a new test that I qualified for. He explained it was a genetic test for the BRCA1 and BRCA2 gene mutation. He had me sit with one of the nurses and go over my family history of cancer. He took my blood and sent it on to be tested. It turned out I was positive for the BRCA1 mutation. With this mutation, the percentage of possible recurrence is about 87%. I was also found to be triple negative which means a recurrence would bring about a much more aggressive cancer.

In life, I believe if we all look back we have people that I like to refer to as angels. They are put in our path for a purpose – whether they held our hand or were our source of strength when we needed it most. Dr. Buchholtz was the only one who listened to me and from the very beginning. He touched my heart in a way that I needed most. I’m not just grateful –I love this man with his beautiful soul and heart of gold, and I can’t thank him enough for taking care of me the way he did.

I am so glad I had the strength to speak up and voice my concerns. So please, do not be afraid or embarrassed because asking questions and listening to your instinct is not silly or dumb. It could save your life. It did for me.

Joanne Hampton is a mom of two, a breast cancer survivor, community advocate and Public Relations and Marketing Director for Breast Investigators.

The Whole You: Is it Hot in Here?

Getting good breast cancer care means caring for yourself as a whole person—understanding how cancer impacts you physically, emotionally and spiritually. This is why we’re hosting Wellness Weekend, a three-day event that combines our annual fall conference, Breast Cancer Today: Individual Treatments, Shared Experiences, and Yoga on the Steps: Denver. In anticipation of the Denver, Colorado weekend, Randi Rentz kicks off our blogging series, The Whole You, with a post about a side effect that impacts a number women of who undergo hormonal therapy for hormone-positive breast cancer – menopause.

Randi Rentz new headshot

Ah, summertime. Long, sunny days. Outdoor cookouts. Lounging by the pool.

Say what??? Make that: Long, sweaty days. Internal cook-offs. Lunging for the pool.

Summer can be difficult if you’re in the midst of perimenopause or menopause. Geez! I first experienced menopausal experiences while receiving chemo. It got worse once I went on  tamoxifen. I also had to have a hysterectomy, which totally threw me for a loop. That procedure, of course, put me in permanent SCREAMING and KICKING menopause.

For those of you who have experienced menopause – naturally occurring or induced by cancer treatment – you know exactly what I mean when I say that hot flashes absolutely STINK!! Not only do they rock your world in a moment’s notice with absolutely no warning, but they (at least mine) are all consuming and utterly UNCOMFORTABLE! Well, let me be more specific: the truth of the matter is that my mind is a wasteland of emptiness during which I am at a complete and total loss of words when a hot flash comes on. They so overwhelm me.

Irritability, mood swings, sudden burst of crying. They’re all part of this new phase in my life. I am now menopause symptomatic (a.k.a. Itchy, Bitchy, Sweaty, Sleepy, Bloated, Forgetful and Psycho).

The number one symptom for me: hot flashes, cold flashes and night sweats. Now, these aren’t the sweats of relaxation you’d feel in a sauna, or the rewarding ones indicating you’ve just exercised This is more like: OMG, I’m on F%$#ing fire.  Call 9-1-1….Nooow! Continue reading

A Refreshing, Calm Morning with a Community of Support

Marcia Pinkstaff blogs about her experience with breast cancer, Yoga on the Steps and the importance of community.


Almost 3 years ago, my life changed forever when I heard those awful words, “You have stage III invasive ductal carcinoma breast cancer.” Breast cancer? Stage III? How is that even possible? Those are the immediate thoughts that raced through my mind. Will I survive? What will life be like after?

I’m excited to tell you that in addition to advances in research and care, which have made early-stage breast cancer, mostly curable, there are also many exceptional programs to help you get your life back after diagnosis. Living Beyond Breast Cancer offers many of these programs including webinars, seminars, a conference, and my personal favorite Yoga on the Steps. LBBC has an amazing team that wants to help you navigate life after diagnosis.

Many organizations raise money for treatments and to deal with the health aspect, but there are so many additional challenges that a survivor must face including financial and mental health issues. The stress of having cancer and what’s to come can overtake you if you let it. LBBC is here to help you face these outlying issues and treat the whole person, mind and body.

I attended my first Yoga on the Steps in Denver, about a year after my diagnosis. At that time, I had finished chemo, a double mastectomy and radiation. I also had the opportunity to share my story, which can also be therapeutic, or at least it was for me. At that point, I still looked like a survivor and didn’t feel like myself, but participating in an event with such a wonderful group of people as the sun comes up is not only refreshing and calming, but a fun way to start your day.

I hope that you will join us for Yoga on the Steps in Kansas City and/or Denver. I would love to meet you and hear your story. And if you’re new to yoga or LBBC, I’d love for you to join us for this inspiring outdoor event. Yoga is a great way to not just help you physically deal with some of the new obstacles through stretching and even just getting some exercise, but also helps to relax you…something that is just as important.

Someone asked me the other day if cancer defines me. I thought it was an odd question. I responded “no.” Cancer doesn’t define me. It’s a part of who I am now and has changed me, but I get to decide what defines me. Cancer is just one of the many things that have shaped my life. You never know if and when you might here those words, “you have cancer”, and I hope you don’t. If you ever do, you will be appreciative of organizations like LBBC and the sense of community that they bring.

Cancer is a lonely disease. Surrounding yourself with others who have been there gives you something that you can’t get from your friends and family who haven’t been there. No matter how much someone loves you and thinks they know what you’re going through, they cannot possibly understand. I love all of those who tried, but I know even with family members who had cancer, I never fully comprehended what the journey was like until I lived it. Please join me in supporting this wonderful organization that gives so much back to the community.

Marcia Pinkstaff is an independent representative and star leader at Silpada Designs Jewelry and a stage III breast cancer survivor.

The Turning Challenge

Hear My Voice Outreach volunteer Maggie Kudirka started #TheTurningChallenge to help raise research funds and awareness of resources for metastatic breast cancer.

One year ago, when I was 23 years old, I learned that I have metastatic breast cancer that has spread to my sternum, spine, and pelvis. Metastatic cancer is cancer that has spread from its original location to another body part.  It is sometimes called advanced cancer or stage 4 cancer.

I am among the 10% of women who are initially diagnosed with metastatic breast cancer. It was the last thing I expected.  Other than being female, I have none of the risk factors for breast cancer: I am very young, thin, physically active and fit. I have never used any hormonal medications; I don’t smoke, drink, or use drugs; I eat a healthy diet.  Genetic testing indicated I do not carry the breast cancer genes. But, I have metastatic breast cancer.

Metastasis is what makes breast cancer a deadly disease. It is the leading cause of death in young women with breast cancer. In fact, every day 108 American women die from metastatic breast cancer. This is over 40,000 women each year and this number has held steady for the last 15 years. If a cure is not found soon, one day it will be me.

Billions of dollars are raised for breast cancer, but only 2% goes toward research to find a cure for metastatic breast cancer.  Most of the money raised is spent on awareness, early detection, and treatments for early stages of breast cancer. Early detection does not guarantee a cure, and successfully treating early-stage breast cancer does not mean that one never has to worry about cancer again. Metastatic breast cancer can occur many years after the patient’s original diagnosis and treatment.

Until a cure is found for metastatic breast cancer, no one with breast cancer can ever be certain that they are cured, even after both breasts have been removed and no cancer is detected following surgery. Our current technology cannot detect whether very tiny breast cancer stem cells have traveled to a new body part. These cancer cells sometimes begin growing after surgery, radiation, and chemotherapy have been completed. In fact, this will happen to about 30% of the women who were successfully treated for early stages of breast cancer. Months, years, or even decades later, they will develop stage 4 breast cancer and die. It is a possibility that no one wants to talk about.  It is the elephant in every breast cancer patient’s room.

Please help raise awareness and funds for metastatic breast cancer research by joining me in the Turning Challenge.  Let’s send a message to breast cancer fundraising operations to turn around and look at us Stage 4 patients; we deserve more than 2 percent.

I started the Turning Challenge as part of my work as a Hear My Voice Outreach volunteer for Living Beyond Breast Cancer. I knew I wanted my outreach project to combine a fun activity with my passion for raising funds for metastatic breast cancer and educating people about the disease.

The Turning Challenge can be fun for everyone: both dancers and non-dancers.  All that you have to do is post a video of spinning or rotating in some fashion.  It can be as simple as the Hokie Pokie or as difficult as 32 fouettes. You can hold a spinning object like a pinwheel or film your pet dog chasing his tail.  There are no rules!

Inspire, entertain, amuse – or just make us smile! Be creative!

Please use  #TheTurningChallenge and nominate three or more friends.  If you prefer not to complete the challenge, please make a donation to METAvivor where 100% of your donation will go to metastatic breast cancer research. Also, visit LBBC.ORG to learn more about metastatic breast cancer and resources available to people living with the disease. Share this information with people living with stage IV breast cancer.

Help make this a Turning Point for metastatic breast cancer research and resources.