Breast Reconstruction and You: Everybody’s Doing It, So Why Don’t We?

Kitt Allan continues our Breast Reconstruction and You Blog Series in anticipation of our Twitter Chat on October 21, Breast Reconstruction Awareness (BRA) Day. We posted part one earlier this week. Learn more about Ms. Allan and her apparel, for which  proceeds of sales benefit LBBC.

IMG_8360-1 Reconstruction is a topic near and dear to my heart even though I haven’t had it myself. I was diagnosed with triple negative breast cancer when I was four months pregnant. The doctors on my team – a surgeon, an oncologist, and a high-risk OB, all advised quick action since my tumor was very aggressive and we needed to get as far as possible in my treatment before I gave birth. About a week after diagnosis I had a unilateral mastectomy and then started chemotherapy. I had asked my surgeon if I should have a double mastectomy but she didn’t see it as a good option because my right breast was healthy and she didn’t want to keep me in surgery any longer than necessary.

At the time reconstruction wasn’t an option. The surgeons agreed that with all the body changes of pregnancy it might be as long as two years before my body would settle down enough for a good reconstruction. At the time, hearing that didn’t bother me that much, as you might imagine my main goal was to have a healthy baby and be healthy enough to be a good mom.

I was fit for a prosthetic, or form as I usually call it, and began wearing it. And over the days and months, having a form on one side and a breast on the other became my new body, and surprisingly I became comfortable with it. Sometimes now I even forget that I don’t have two real breasts.

Reconstruction can be made to seem like an inevitable part of the treatment process. Every time I visit my breast surgeon she tells me about all of the new surgical techniques and I have to admit that options have come a long way and more and more women are happy with the results. I listen, always wondering if she’ll say something that changes my mind, but that hasn’t happened yet.

The only time I ever considered reconstruction was while shopping for lingerie and swimwear and I felt limited by the choices available to me. I wasn’t ready to resign myself to frumpy clothes, so through my business I give survivors more choices so that we can all feel comfortable in our own skin and more like ourselves again. I think there are a million great reasons for women to have reconstruction but finding garments that make you feel like yourself shouldn’t be one of them.

“When it comes to reconstruction, and just about anything else in life, I think each woman should decide for herself what she wants to do with her own body.”

When it comes to reconstruction, and just about anything else in life, I think each woman should decide for herself what she wants to do with her own body. From my own experience, I also know that not all women can have reconstruction even if they want it. I design garments that take into account all different choices and realities. While attending LBBC’s Wellness Weekend a couple of weeks ago I was struck by the number of women, many of them young, weighing their options for reconstruction – thinking seriously whether to have it, when to have, or how to have it. I was glad to see them getting information not only from doctors but also from other women who have been there. All women should have as much information as possible to make the best choice for themselves.

 I wish that women who can’t have reconstruction, or don’t choose to, had the chance to meet more women like themselves so that they didn’t feel so alone. The truth is we aren’t all doing it and the recent JAMA study showed nearly 60% of women don’t choose to or can’t have reconstruction. I had no idea there were so many women like me.

Over these last few years I continue to educate myself and I am still happy with my decision to stay as I am. First, I couldn’t have reconstruction and once I could I found that I didn’t want it. This is my body now and I’m comfortable with that.

Tweet about breast reconstruction with Kitt and our panelists on October 21.

Why We Support LBBC

One of Living Beyond Breast Cancer’s newest partners, Wholesome Harvest Baking, took a moment to explain why they support our vision and mission and the valuable resources we provide to those affected by breast cancer, during Breast Cancer Awareness Month and Beyond October.

Wholesome Harvest Product PhotoWhen facing a breast cancer diagnosis, access to trusted, comprehensive and accessible information is invaluable. Living Beyond Breast Cancer ensures patients have that along with a community of support to help them through the difficult and unique challenges that they will inevitably face. Wholesome Harvest Baking is proud to support this amazing and impactful
ion during the month of October by donating a portion of proceeds from the sales of our 9 Grain and Seed bread to LBBC. With 84 cents of every dollar donated going to unique research projects and programs like their Young Women’s Initiative and Breast Cancer Helpline, we are honored to join with our consumers and retail partners in supporting the fight against breast cancer.

“In addition to our donation, by including information about LBBC on packaging and in-store [partner] bakeries we will be raising awareness about an impactful and inspiring organization.”

In addition to our donation, we hope that by including information about LBBC on our packaging and in the in-store-bakeries of our retail partners, we will be raising awareness about an impactful and inspiring organization that works to address the needs of everyone affected by breast cancer – patients, family, caregivers – regardless of age, stage of disease, background or identity. Working to educate and empower women is integral to the fight against breast cancer and LBBC understands that no one is one-size-fits-all. Whether someone is newly diagnosed, recently completed treatment, is years beyond or is living with metastatic disease, or someone may be a family member, friend or healthcare provider, they have programs and services unique to an individual’s needs and personal circumstances. We are humbled to play a small part in letting more people know about this amazing organization.

As a company, we value passion, trust and quality and work to ensure those values are part of our products, including the Wholesome Harvest 9 Grain and Seed. Being able to partner with an organization such as LBBC that embodies the same values is both an honor and a privilege.

You can learn more about our partnership with Wholesome Harvest Baking by visiting the Shop to Support section of LBBC.ORG.

Breast Reconstruction and You: Let’s Discuss Mastectomy and Reconstruction

My Fabulous Boobies writer and breast cancer advocate Nicole McLean kicks off our Breast Reconstruction and You Blog Series in anticipation of our Twitter Chat on October 21, Breast Reconstruction Awareness (BRA) Day. A version of this post appeared on her blog in October 2012. It was reposted with her permission.

Sex and Intimacy_Nicole McClean

Hello boys and girls. Today we’re going to discuss mastectomies and breast reconstruction. Don’t look at the screen that way… I’ll keep it easy. I promise.

I’ve attached a picture to this post of two women who are survivors. The sister in the first picture is posing with so much sass, and showing off her mastectomy scar. The second picture is showing the scars from a breast reconstruction surgery. I selected these two pictures because these two women represent me.

My Mastectomy Story

Four months after I started chemotherapy, I had a modified radical mastectomy.

Definition: a mastectomy is surgery that removes the whole or as much of the breast tissue as possible.

There are different types of mastectomies, but basically the purpose of a mastectomy is to remove the cancerous breast from the body in order to prevent the spread of the cancer to other parts of the body. It is (in my understanding) a life-saving measure.
I struggled for months to accept losing my breast. I could not grasp the concept that I had to lose a part of my body in order to save my life. However, because of different things about my cancer, as much as I wanted to save my breast it was not the best course of action.

In my case, I had multiple tumors in my breast tissue. At least one tumor was very, very close to my chest wall (which meant that it was close to my bones). And a biopsy revealed that the cancer had started to migrate away from the breast and had entered my lymph nodes (which meant that if it was not caught at that time, it would have entered my blood stream and could have ended up in other organs). So after debating with my medical team and pleading with God for some other option for months, I eventually accepted that losing my breast was the best course of action for me.

Each Survivor Has a Different Choice to Make After Their Diagnosis
Not every survivor has to face this decision. Some survivors do not have to have any breast surgery. Those cases are caught very early (perhaps from a mammogram or some other test that reveals cancer cells) and they are handled with chemotherapy or radiation (or both) without surgery.

Some survivors are eligible for a lumpectomy, which is a breast-sparing procedure that removes just the cancerous tumor and leaves the majority of the breast intact. I wasn’t that fortunate.

[insert advice here:  This is why being proactive about your breast health is important. The earlier the cancer is detected, the less invasive the treatment is and the higher the likelihood that the cancer can be removed completely.]

Now, Let’s Discuss Breast Reconstruction – I Chose a TRAM Flap Proceduremastectomy photo

The picture to the right shows a woman after she had a mastectomy. The second picture is a sister showing her reconstruction scars and her reconstructed breast. There are a lot of ways that a woman who chooses to have her breast replaced can do that. She can have implants. Or she can choose to have reconstruction that uses her own body tissue (like I did) to reconstruct a breast. There are a few different types of procedures that utilize your own tissue. The surgery I had was a TRAM flap.

Definition:  TRAM flap (transverse rectus abdominus muscle) is a surgical procedure that creates a new breast mound using tissue from your belly that is tunneled under your abdominal muscles and up to your chest.

The procedure is very detailed and requires a lot of surgery. But, it is a one-shot deal. Meaning, unlike breast implants, you do not have to have several procedures before your breast is done. I went into the hospital with one breast. I came out of surgery 12 hours later with two. It is not the same way for implants. However, with implants, the surgery is not as invasive and it works if you are not a candidate for a flap procedure.

Life after the TRAM

As you can see from the picture, there is a long scar that stretches from hip to hip along your bikini line and then there is a large scar around the breast. You will also notice that there is no nipple and no areola either. Lemme tell you… the first time I looked at my noobie (noobie = new boobie) I was not prepared for the Barbie-like look. (laughs) However, in all honesty, the option for what amounted to a tummy tuck at the same time I’d get a new breast was sort of the selling point for me.

You can laugh… yes I’m vain like that. And I’ve been pretty happy with my flatter tummy too. My theory was… if I’m going to lose my breast, get kicked into early menopause and lose my fertility… at least I can be gorgeous after its all said and done.

So, there ya go. Now you know the basics about losing a breast and gaining a new one. There are a lot more details that I could go into but… I’m trying to take you slowly so that you’re not overwhelmed and freaked out. (laughs) But this is it.

Why I chose the TRAM flap
I spent 10 months with one breast. I was miserable as hell about it. I felt like a lopsided freak. Even though I eventually came to accept it. I never liked wearing my prosthesis. I hated that even after I purchased the largest prosthetic breast I could find, it still was significantly smaller than my natural breast. I hated that I had to stuff my bra with the prosthesis to try to look even. And I hated that I had to have a breast reduction so that my natural breast was the same size as my noobie. I know… that’s a lot of hate right there. But its true. I fought and dragged my feet through all of this. But, now that I’m on the other side… I’m so much better about all of it. And… I can wear a bikini now. (laughs)  It is the little things in life that make me happy. I have about four bikinis now — before cancer I would be hard pressed to even put on a bathing suit. I will probably have many more before its all said and done.
I’m not suggesting that wearing a bikini makes all of this worthwhile. Because, well, that would be silly. But I am telling you that life does go on and you can reclaim some of your self-esteem and walk into your new normal with a happier outlook. for me, it was important to have two breasts. For some women it is not. Some women opt to remove both breasts. Some women opt to never replace their lost breast. It is a very personal choice and journey. There is no right way to do it. You have to do what works for you.

Tweet about breast reconstruction with Nicole and our panelists on October 21. 

Pink to Black

October 13 is Metastatic Breast Cancer Awareness Day. The Cult of Perfect Motherhood blogger and Hear My Voice Outreach Volunteer Beth Caldwell writes about an event taking place in Washington D.C. Beth invites you to learn more and join next Tuesday. 

For a lot of women with metastatic breast cancer, October is hard. You might be surprised by that – with all that pink, you might think it’d be a time where we feel supported and hopeful that the focus on breast cancer might bring us a cure soon. But for me and many others, all that pink inspires only frustration and anger and despair, and this year, we’re planning to turn those feelings into action.Beth Caldwell

What many people don’t know about metastatic breast cancer is that there is no cure for it. Everyone who has it will die of or with their disease. Three out of 4 women and men (yes, men get breast cancer, too) diagnosed with metastatic breast cancer will be dead within 5 years, and the average life span from diagnosis is only about 3 years. Those of us diagnosed with metastatic breast cancer endure treatments that can rob us of our energy, our hair, our breasts, our fertility, and cause pain, vomiting, blisters on hands and feet, mouth sores, neuropathy, and a host of other horrible things. In sum, life with metastatic breast cancer is often nasty, brutish and short.

In addition, many people don’t know how little of the research dollars for breast cancer go towards metastatic disease – the kind of breast cancer that kills you. It’s only about 7 percent. That’s right: 93 percent of the research dollars spent on breast cancer go towards early-stage breast cancer–the kind that doesn’t kill you. Which is why we still don’t know how or why some breast cancer metastasizes, or how to stop it from metastasizing, or how to stop metastatic breast cancer from killing people. We’re spending 93% of our precious research dollars asking the wrong questions.

On top of that, those of us with metastatic breast cancer know that awareness is not a cure. When I was diagnosed with breast cancer and had to tell my then-6-year-old son, I started out by asking if he knew what breast cancer is, and he said yes. Even HE was aware of breast cancer. If awareness was the solution, 40,000 Americans wouldn’t be dying every year from metastatic breast cancer. Including me.

So, now that you know all this about metastatic breast cancer, imagine how we feel when we turn on the television or go to a store and see a sea of pink, knowing that the awareness won’t save us and that the vast majority of the money being raised isn’t helping us either. We see that pink ribbon and know that for those of us with metastatic disease, the pink ribbon will someday turn to black. Knowing all this, our anger and frustration and despair doesn’t seem so odd, does it?

But this year, we’re trying to do something about it. We’ve started an organization called MET UP, modeled on ACT UP – the AIDS activist group that helped change the landscape for people living with AIDS. We intend to demand change in the world of breast cancer, and we’re starting by organizing a protest at the U.S. Capitol on October 13. We’ll gather at 11 a.m., and at noon we’ll hold hands and lay down to honor the 110 Americans and 1,430 people worldwide who die every day of metastatic breast cancer. We will also be meeting with aides to members of Congress to demand that Congress direct the National Cancer Institute to begin collecting data on how many people with early-stage breast cancer later develop metastatic disease; fund more cancer research in general;, and ensure more federal research dollars are spent on metastatic disease, so that, like people with AIDS, people with metastatic breast cancer can live with their disease instead of dying from it.

We’d encourage anyone who wants to help save our lives to join us at the Capitol on October 13, to show the world what metastatic breast cancer really looks like. I truly believe that if we join together and make our voices heard, we can change the landscape for people living with metastatic breast cancer, and I hope you’ll join us in this effort! You can find more details about the event in D.C. on the Facebook event listing.

My Climb is a Gamble

Concluding our blog series for Beyond the BreastLesley Glenn writes about preparing for her climb of Mt. Whitney, which she’s attempting today (we’re rooting for you, Lesley!). She reflects on how the preparation has informed her approach to living with metastatic breast cancer. Take action with the Beyond The Breast Campaign.

As you are reading this, I am attempting my first climb up Mt. Whitney, the tallest mountain in the lower 48 at 14,505 feet.

The stats say that 2 out of 3 people who attempt the mountain on their first try, don’t make it.  I am going with two of my girlfriends. You do the math. All of us have been training equally.  Not one of us has an advantage over the other.  We each have the desire, tenacity and perseverance to conquer the mountain.  We each want our summit experience.

IMG_3340But what we don’t know is how each will respond to the high altitude. Or what weather system might be waiting for us at 10, 12, or 14,000 feet. No matter how optimistic, how much we have trained, or are prepared for this climb….

…It’s a crap shoot – something that is random, not based on skill.

All of us may summit, two of us, one of us…. or maybe none of us.


It’s just like stage IV metastatic breast cancer – the incurable breast cancer.

You’ve heard these stats.

  • 1 in 8 women will be diagnosed with breast cancer.
  • approximately 30% of all women diagnosed with early-stage breast cancer will go on to have metastatic disease regardless of treatment.

But do you know these figures?

  • Approximately 40,000 women and men die of metastatic breast cancer every year in the US, and this number has not changed meaningfully in 40 years. (1) Break this down to #110 daily.  Yes, daily.
  • The median survival from diagnosis with metastatic breast cancer is 2-3 years, and this number has not changed meaningfully in 20 years. (2)
  • About 24% of patients with metastatic breast cancer will be alive 5 years after diagnosis.(3)

Living with metastatic breast cancer is also like climbing a tall mountain.

It’s a crap shoot – something that could produce a good or bad result.

In other words, some of us might live a long life (summit). But statistics show most of us will die from the disease. (We won’t make it to the top.)


My climb is a gamble.  My life is a gamble.


Yes, I know…..I hear it all the time.  “Everyone’s life is a gamble.”  It’s true.  But the odds are more against me than those who don’t have a metastatic cancer diagnosis.

When I come back down off of the mountain, my hope is that I will be able to share with everyone about my summit experience.  But if I’m not able to, then I will share with you about my journey in trying to get to the top…..the challenges, the victories, the moments where I wanted to quit, and the junctures where my dream to summit drove me forward.

As is my  intention to share my journey in living with metastatic breast cancer.   The good, the bad, the ugly, the inspirational….the reality.

Lesley is a wife, mom, artist, writer and an avid hiker. Since January of 2015, she has hiked over 40 trails, and climbed up 10 mountains. She has been living with stage IV disease since May 2013, and is currently stable. She just turned 50 years old. Lesley also runs the #voicesofMBC blog and tells her own authentic story of thriving with cancer at

Stats: Special thanks to MET UP – MBC Exchange to Unleash Power for these statistics and being a voice for the metastatic community. You can find them here on Facebook.  

  1. Metastatic Breast Cancer Alliance Landscape Analysis (2014), p. 8
  2. Metastatic Breast Cancer Alliance Landscape Analysis (2014), p. 8
  3. American Cancer Society,

Refusing to Be Silent

Kahron Palet is a Hear My Voice Outreach Volunteer and the creator of this powerful video below. In the video, she shares her story about her diagnosis with stage IV disease and asks you to get educated and support research. Learn how you can support people living with metastatic breast cancer by joining Beyond the Breast and taking action.


Just Beyond Our Reach

Lori Tragesser blogs about living her life after a stage IV diagnosis and having hope for advances in research and the larger breast cancer conversation. Support people like Lori. Join the Beyond The Breast Campaign.

I never dreamed that I would be here…in this moment. My story…beyond my wildest dreams.

Breast cancer beyond my breasts.  When I was first diagnosed with breast cancer, I didn’t even know it was possible to have breast cancer go beyond the breast.  But on August 27, 2014, at 43 years old, I joined some 150,000 U.S. women and men in a journey beyond our control.


I am blessed beyond measure with the people in my life.  I am wife and a mother, a daughter and a sister, an aunt and a niece, a friend and a co-worker.  My husband and I are raising four teenage boys and a middle school-aged daughter.  Our lives are sometimes busy beyond belief, but they are everything to me.  My heart breaks for them.

When you are stage IV, you learn to look beyond what you can see.  We all have a timeline with no real numbers on it.  But when your cancer has metastasized, you are suddenly holding that timeline in your hands.  No numbers. Only an average of three years. What does that mean?  How long is that?  There is no time to waste.  Life is found somewhere beyond our doubts.

I have to live beyond my limits. This isn’t day-to-day life anymore.  With ongoing infusions and injections, my body changes.  Exhaustion hangs on my shoulder.  My stomach battles me at will.  Then there are all the other side effects that come and go as they wish.  But there still is so much I want to do and see. So I seek to find sustainability and balance for myself. I teeter totter between pacing myself through my treatments and doing as much as I can with my friends and family.

I found myself beyond scared.  I knew there wasn’t time to waste dwelling on “poor me.”  I wanted everyone to hear my voice. I quickly found that I was not alone. Our voices are being heard as the landscape of our prognosis is ever-changing. But sadly, approximately 110 of my stage IV sisters are still dying every day. We need more.  Research does continue to make remarkable advances in treatments, but they can only do this with more funding.  With good news always on the horizon, I don’t lose faith that the cure is just beyond our reach.

I never dreamed I would be here…with cancer beyond the breast.

Read more of Lori ‘s story on her blog, Thanks for the Mammories.