Get [talking] with us. [Part 1]

In 2016, Living Beyond Breast Cancer is recognizing 25 years of service to those impacted by breast cancer. Throughout the year, we’ll be featuring not only the stories of the women and men who have turned to LBBC for help, but also the stories of individuals whose commitment to the work we do have made an indelible impact on furthering our mission of connecting people to trusted information and a community of support. 

Mark Plamondon is one of those people.

You know that feeling you get when things in your life are RIGHT?  Not the kind of right when you answer a question correctly or still make it to work on time even though traffic was horrible. I’m talking about the kind of right when life is RIGHT.  All caps.  Maybe an exclamation point, too, for emphasis.  If you’re like me, you’ve probably come to find out that the times RIGHT happens are few and far between.  But they do happen.  For me, one of them was my wife, Lee.  When I was with Lee, things were RIGHT. Exclamation point.

We met while working at the same advertising agency, where we were introduced to each other through a mutual friend.  Lee was fun and smart, had a great laugh and was a fantastic communicator.


“Lee was fun and smart, had a great laugh and was a fantastic communicator.”

She could talk to anyone about anything all while making them feel like they were the only person in the room with her.  It made her great at what she did professionally.  More importantly, it made her great to be around personally. People gravitated to her, myself included. Amazingly, the courage needed to ask her out on a date returned later when I asked her to marry me.  Lucky for me she said “yes.” Both times. And off we went.

In 1994, Lee was nursing our second son when she noticed something that made her uneasy. A visit to her doctor led to a series of tests which led to the news she had breast cancer.

My 34-year-old wife, the mother of my two young boys, had been diagnosed with early-stage breast cancer.

We were told Lee’s best option, at the time, was chemotherapy. So that’s what we did.  We hoped for the best, of course. She was young and healthy but for the breast cancer. Which tests indicated was early-stage. So, you can imagine our shock two years later when it was discovered that the cancer in Lee’s breast had metastasized.  To her bones. And liver. And brain.

My 36-year-old wife, the mother of my two young boys, had been diagnosed with stage IV breast cancer.

Earlier, I shared with you that Lee was a communicator. What made her so amazing at it professionally (her marketing jobs) and personally (everything else) was an understanding of its power.  She was amazed, even dumbfounded at the lack of anything she found to be of value to help her make sense of her diagnosis and what she could expect.  And then she found Living Beyond Breast Cancer.


25th Anniversary Mark

Be sure to to read the second part of Mark’s blog to learn how Lee used the power of communicating to help establish a core LBBC program and inspire Mark to use his experience to help LBBC grow in ways neither of them expected.

If you missed it, here’s the first blog in this series: Get […..] With Us: Celebrating 25 Years of Living Beyond Breast Cancer by LBBC CEO   Jean Sachs, MSS, MLSP

The Spirit of Pageantry

Natalie Gamble is back on our blog with a post about supporting her daughter while in treatment for breast cancer, pageants and being honored with the “Spirit of Pageantry” Award.


Life doesn’t stop because of a breast cancer diagnosis – it goes on. How you decide to approach that life is up to you. Me personally, I never missed a step.

After deciding on a treatment plan and scheduling my surgery I was on my way to Virginia Beach with my daughter for the International Junior Miss. Some background information about this trip: My daughter Mikayla is my hero and one of the strongest, most driven individuals I know. I tease her all the time that I want to be just like her when I grow up. At the tender age of 9 she announced she wanted to be a microbiologist and will be attending U.C. Berkeley to earn her degree, and here is the kicker – she wants to pay for it herself!  Since those words left her mouth, Mikayla, now 14, has made it her mission to do just that. Besides maintaining a A/B average in school, she competes in natural pageants to earn scholarships, pageants like International Junior Miss.

As a pageant mom, I wear many hats: tailor, beautician, coach, travel agent and cheerleader to name a few. Needless to say, my cancer diagnosis was a huge hiccup in my role as her support system. Monetheless, I was determined to work around it.  On our way back from an exhausting week of competitions, I received a phone call from my daughter’s new pageant director Christina Sacha Grooms, who introduced herself to us and updated us about the rest of my daughter’s reign.  I informed her of my diagnosis and told her that no matter what I would get my daughter where she needed to be.

While I was fighting the good fight in treatment, my daughter was reigning as International Junior Miss’ Colorado Preteen 2014. And as promised she was at every event, photo shoot, and appearance as scheduled. Our pageant family was just as supportive as our immediate family and to this day, I thank God for these incredible people. Every time we saw each other it was a family reunion and it touched my heart to know they read and looked forward to my Facebook posts. Every day I tried to share my feelings and thoughts with my family and friends.  Continue reading

TNBC Aware: Leaning Into the Wind

Blogger Anna Craig wrote this original post about living with stage IV triple-negative breast cancer for our TNBC Aware series. 
AnnaI am 38 years old and I have stage IV triple-negative breast cancer.  This is the bad kind of breast cancer that no one really talks about.  It is incurable and will ultimately take my life. Triple-negative breast cancer is defined by what it is missing. It is the left over breast cancers that do not have one of the three known receptors; estrogen, progesterone and HER2. More likely to occur in young adults, triple negative makes up 15% to 20% of all breast cancers.  We are a minority.

Living with metastatic breast cancer is like playing a game of Whack-A-Mole, where each person has a finite bag of mallets. When a metastasis shows up on a scan you try to whack it on the head with a mallet. Sometimes it works, sometimes it doesn’t.  When it doesn’t, you grab a new mallet and keep whacking until you run out. As you can imagine, the bigger your bag of mallets the more likely you are to extend your life. Unlike HER2- and hormone-positive breast cancer, triple negative does not yet have targeted treatments like Herceptin. My treatment options, outside of clinical trials, are limited to chemotherapy, surgery and radiation. This means my bag of mallets is much smaller.

Having metastatic breast cancer in your 30s is complicated. As with most young people my age, I am in the thick of my life. I have two small children and a budding career as an architect.  Until cancer, I was healthy, active and ambitious.  I had patiently begun to build my life. I had even started to discover things that inspire me to dream without limits.  My life was just starting to take flight, when in an instant, cancer happened and my world crashed at my feet.

I’ve always been a person who embraces the idea that life is a journey.  I pictured my career as a long twisting road of discovery.  My twenties and thirties would be about understanding how buildings work and how materials come together.  I would take time off to have a small family.  I would balance my career and my ambition with parenthood.  Life would be thick, active and vibrant.

In my forties and fifties, I would start to come into my own.  I would create a body of work that was imaginative and inspiring. My buildings would have spaces full of light, texture and meaning.  In my sixties and seventies, I would travel the world and work on a few special projects. My buildings would reflect my wisdom and grace.  I would be an eccentric old architect with lots of grey hair, wrinkles, colourful socks and brightly patterned clothing.

Triple-negative breast cancer with its never ending toxic cycles of chemo derailed that life. Instead of balancing my career with my family, I have spent days and weeks in bed. Cancer can be very isolating.  Sometime I get so trapped in my illness and my discomfort that I struggle to relate to the people around me.  The more time I spend in bed, the more my dreams and passions drift away. Often I feel very alone, vulnerable and angry.  Continue reading

TNBC Aware: Education and Support Through Virtual Community

Today, March 3, marks Triple-Negative Breast Awareness Day. LBBC is marking the day with a Twitter Chat and an . Jennifer Stringer Staggs kicks of our series with a post about being newly diagnosed with triple-negative breast cancer, worrying about her daughter and sister, and finding support and community online. 


When my provider told me that I had triple-negative breast cancer, I was overwhelmed. Before learning my diagnosis, I Googled the different kinds and triple negative scared me the most. I read a lot about this type of breast cancer, and was told a lot of things that scared me. For example, I heard that if I had triple-negative that my chances of survival would be less than if it was hormone-sensitive, and that there was more of a chance it was genetic and could be passed on to my children.

My provider gave me a lot of information, but I found the best information going on Facebook and finding breast cancer forums. Diagnosed at age 29, I did not want to go to a local support group that had a huge age gap. It was a lot easier for me to get information and support online because everyone there either wanted the same information or already went through it. It felt more like a sisterhood in the forums. Nobody judged the questions I had and they were able to tell me what to expect from the treatments I was about to receive.

I got some of the best information going to Living Beyond Breast Cancer’s Fall Conference. I listened to professionals explain what triple-negative meant and what kind of treatments and side effects to expect. They also had an expert speaking about young women going through all of this and what to expect from “chemopause” and changes in your sex drive. I learned so much information there that none of my doctors covered.

Having triple-negative breast cancer made me very concerned for my daughter and my sisters and their kids. I worry they could still get cancer, even though I tested negative for the BRCA gene. I don’t want any of them to have to go through what I have had to endure. Continue reading

It’s About You: Kate Garza’s Story


KateGarza2 for 5 28Kate Garza is back with a new blog post for our fall conference blogging series, It’s About You. The yoga instructor, writer, wife and mother of three discusses the “breast cancer journey” concept, while discussing her own and her anticipation of Breast Cancer Today: Individual Treatments, Shared Experiences.

Everyone calls it a journey – the breast cancer journey. And if I weren’t so sick of that term, I would use it, too. It is descriptive to a point, and it allows other people to remember that you are not living the life you had in mind anymore. But this so-called “journey” is really more the life equivalent of being kidnapped, thrown into the trunk of a car and driven in the dark to an unknown location. That’s the image that flares in my mind anyway, when I hear “journey with breast cancer,” a junket with only sketchy clues about where you may end up. 

I was diagnosed with stage II invasive breast cancer at age 53, almost 2 years ago now, when my kids were 15, 16 and 17 years old. Life would have been complex enough with three kids moving up and out, but throw breast cancer on top of that project and I had more moving parts than I could track with sophisticated software. 

I had a fairly garden variety diagnosis of estrogen receptor-positive/HER2-negative breast cancer. I followed the standard treatment with lumpectomy, 8 cycles of chemo and 30 doses of radiation therapy. It was the most difficult health crisis I had run across in my life and treatment left me exhausted and brain-fried, but grateful that I traversed without complication. I finished a week before number one graduated from high school. After a month off for R&R, I began taking an aromatase inhibitor (AI), letrozole. 

After 3 months of difficult joint pain side effects, I switched to anastrozole. Again, the difficulties with pain and mobility arrived, but I stayed with the second medicine for 6 months until, completely frustrated and full of pain with every movement, I gave up. I was done. I couldn’t see the point of prolonging a life that felt this bad. Did I mention that I am a yoga instructor? I couldn’t move. Not even enough to practice the yoga that might help me feel better. And working, in my chosen profession, was out of the question. So by the time my second child graduated this past June, I was 2 months into my medication vacation and starting to feel much better. I could move again. Pain with walking and the sleepless nights were beginning to fade away.  Continue reading

Yoga: A Survivor’s Tool for Strength

KateGarza2 for 5 28Kate Garza is a mother of three teenagers, cancer survivor and yoga instructor in Cheltenham. Her “Team Kangaroo-om”  participated in our event, Yoga on the Steps: Philadelphia, on Sunday, May 18.  For more information or to register for a Yoga event near you, visit Read Kate’s blog at

I climbed the steps of the Philadelphia Art Museum last Sunday for Living Beyond Breast Cancer’s Yoga On The Steps, a sun drenched block party of yoga enthusiasts and breast cancer affiliates. Occasionally my thoughts traveled back to last year’s event, which I attended during my own active treatment, bandanna wrapped around my chemo-bald head. On that gray day a year ago I felt as bad as the cold fog and drizzle that enshrouded the steps.

But last Sunday, bathed in sunshine, I shook off a year and a half of living with breast cancer treatment. I gathered with a large team from my kids’ high school, faculty and students together. I was there to give and gain support and to advance LBBC’s mission of bringing patients together with resources throughout the journey, one that can thankfully now include many years of health beyond treatment.

Cancer survivors have long had an intuitive sense that yoga helps body and mind, but now we have studies to prove it. In March, the Journal of Clinical Oncology published a study of 191 breast cancer patients by researchers at MD Anderson Cancer Center in Houston. It linked yoga to improvements in self-reported quality of life, including measures of mood, pain and fatigue. Practicing yoga also appeared to help regulate the stress hormone cortisol, which is tied to poor survival among breast cancer patients.

Aware of these unique qualities of yoga, Living Beyond Breast Cancer has held Yoga on the Steps as its signature fundraising event since 2001, and in recent years has expanded to other cities — this July in Kansas City and September in Denver. Last year, LBBC, the Ardmore-based national education and support organization, published a Guide to Understanding Yoga and Breast Cancer, detailing the benefits of yoga to coping with anxiety, fatigue, strength and body image.

But what exactly is it about yoga that helps? Continue reading

Our New Vision and Mission


This morning, Living Beyond Breast Cancer’s CEO Jean Sachs released the following message to our friends and supporters:

Dear Friends:

All of us at Living Beyond Breast Cancer are excited to share our new vision and mission statements with you:

Our new vision

A world where no one impacted by breast cancer feels uninformed or alone.

Our new mission

To connect people with trusted breast cancer information and a community of support.

These new statements were developed with the help of over 1,200 of you who responded to a survey we sent out earlier this year. Your input was used in a day-long retreat with members of the board of directors and staff. We learned what LBBC services are valued most and why so many have come to depend on our educational programs and services that allow for connection to others diagnosed with breast cancer.

For me, these new statements say with clarity what we strive to do every day and what we hope to achieve over time. Yesterday, I spoke with a long-time friend who had just been diagnosed with breast cancer.  She was overwhelmed, scared and shocked. Our conversation and the resources I was able to put in her hands grounded her and provided her with enough comfort and confidence to take the next step.

This is what LBBC does every day, and it is exactly what the new vision and mission statements express.

I hope you share my enthusiasm and, as always, if you have comments I would love to hear from you.



Jean A. Sachs, MSS, MLSP

Chief Executive Officer