A Symbol of Strength, Connection and Hope

Dear Friends,

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Last year we embarked on a process to refresh and re-imagine our look. Nearly two thousand of you responded to our survey and shared your thoughts. We used your feedback as the foundation for this important work and we’re excited to share our new logo with you.

 

“This new logo is a symbol of what many of you told us you appreciate most about Living Beyond Breast Cancer: strength, connection and hope.”

This new logo is a symbol of what many of you told us you appreciate most about Living Beyond Breast Cancer: strength, connection and hope. We hope you like it.

 

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On behalf of all of us at LBBC, thank you. Please let us know what you think.

Warmly,


Jean Sachs
Chief Executive Officer
Living Beyond Breast Cancer
354 West Lancaster Ave, Suite 224
Haverford, PA 19041
(610) 645-4567

Toll-free Breast Cancer Helpline: (888) 753-LBBC (5222)

   

I Wasn’t Broken or Fragile…I Just Had Cancer

20141011_123702Today, LBBC blogger and friend Natalie is here to share what it was like for her to hear the words “You have breast cancer” and how her and her family reacted.

My name is Natalie Gamble, I am 43 years old and in May of 2014 one phone call changed my life forever. ” Your biopsy came back positive, Natalie I’m so sorry but you have cancer.” Cancer? My first reaction of course was tears. I cried in my husband’s arms afraid of the unknown because while an enlarged lymph node was positive for cancer my mammogram and ultrasound had shown nothing but benign cysts. My first thoughts after my crying jag were: “The Devil is a Lie!” Cue my second reaction, I got mad, I mean fighting mad and decided right then and there no matter what I was faced with I was going to fight and I was going to win. The next few days were a blur of appointments, procedures and tests I never even knew existed. After it was all said and done I was diagnosed with Triple Negative Breast Cancer, Stage II. Continue reading

Growing Initiatives for Metastatic Disease and LGB People Diagnosed with Breast Cancer

Catherine-Ormerod 1Catherine L. Ormerod, MSS, MLSP, LBBC’s Vice President of Programs and Partnerships, blogs about new resources and programs we developed for people living with metastatic breast cancer and LGB people affected by the disease.

This month, LBBC introduces two new initiatives to provide our brand of trusted information and support to two underserved populations in the breast cancer community: people living with metastatic breast cancer (MBC) and lesbian, gay and bisexual people diagnosed with breast cancer.

LBBC’s Hear My Voice Outreach Program will train 25 individuals from around the country and who are living with metastatic disease to connect others with resources, information and support for coping with stage IV breast cancer. Original LBBC research, confirmed by subsequent surveys, revealed that those living with MBC feel isolated, misunderstood and often unaware of programs and resources tailored to their experience. Other studies show that participation in peer outreach programs improves emotional health and well-being.

I see the power of connection at every one of LBBC’s conferences and thus I am very excited to begin the Hear My Voice Outreach Program at LBBC’s Annual Conference for Women Living with Metastatic Breast Cancer in April. We have already received many applications for the first Hear My Voice, so we know we have tapped into a large, unmet need.

Our second initiative centers on original content we developed to assist lesbian, gay and bisexual people living with breast cancer get the quality of care they need and deserve. For many, coming out to members of their healthcare team can be difficult or scary. The guide, which is the first of its kind for people with breast cancer, provides information, support and resources to help make having these conversations easier. Continue reading

My Fear of Breast Cancer Recurrence (A Poem)

EliseBourneBusbyThe fear of recurrence, or fear of cancer coming back, is one of the most common worries among people affected by breast cancer. Elise Bourne-Busby, EdD, wrote this poem about her own fear of recurrence in anticipation of our free January webinar on this topic.

The fear that cancer may invade my body again
Keeps recurring daily in my brain,
I must change my habits, if I want to stay healthy
Good health is not cheap, I must re-assign my money,
Good nutrition first, eat only the best
Fresh fruits and vegetables, get plenty of rest,
No candy and soda, drink water every day
I am what I eat, and for this I must pay,
My immune system is the core of my being
My body is designed to do the Self–Healing,
I must treat my body kindly, I must help the process
Exercise a little more, eat a little less,
My doctors will treat me, but I must keep the appointment
Get frequent health checks, even though inconvenient,
I must not be scared to ask my doctors any question
They are the experts, I pay for this information,
I must not be afraid to say I don’t understand
I must always, always get a second opinion,
I need my health, so I must remember
To ask my doctors for my health numbers,
Show me my glucose, cholesterol and blood pressure
And when I go home I’ll take my waist measure,
My good health is not only important, it’s mandatory
I must fire my doctors if necessary,
But I am not perfect, I do not always rest
Sometimes I eat junk food, and make my life a mess,
So I have to stay strong, and talk to myself daily
Nurture the core of my being, to balance spirit, mind and body,
I must invest in good health, fear is not an option
I must take care of me, that’s the only solution.

Elise Bourne-Busby, EdD, is a 15-year breast cancer survivor, and is a Reach to Recovery volunteer for the American Cancer Society. She is one of the founding members and chairperson of the group More Than Friends, which gives Sharing and Caring baskets to cancer patients undergoing treatment, provides transportation, makes home and hospital visits and assists the uninsured and under-insured with information to solve medication needs and financial issues.

The fear of recurrence doesn’t have to run your life. Join us on Thursday, January 29, at noon ET, for our fear of reccurence webinar, to learn about practical tools to help you manage your fears.

Celebrating My Five Year Milestone

Surgery Day: Tiffany just before her double mastectomy.

Surgery Day: Tiffany just before her double mastectomy.

LBBC blogger and friend Tiffany Mannino is back, but this time, instead of sharing one of her entries from her self-titled letters ‘Beautifully Broken: Letters From a Girl/Woman/Human in Progress’ penned to her unborn daughter Lola during her breast cancer journey, she’s here to share what being 5 years out from her cancer diagnosis means to her and what she’s learned in the process…

Three weeks ago, I celebrated my five year survivor anniversary. Whether or not the medical world would allow me to call myself ‘cured’, December 16th was an absolutely incredible day and a milestone I will never forget. They say it takes a village to raise a child, but I as reflect on the last five years of my life, I believe that it also takes a village to raise a cancer survivor.  I will never forget when it first hit me that I had my very own village. May 2010…my first Race for the Cure as a survivor. Our Breastfix at Tiffany’s team of more than twenty came together on a very cold, May morning. I was freezing and SO weak from chemo, but I crossed that finish line with tears in my eyes and incredible joy in my heart.  I can’t ever remember a time feeling more loved and supported.

Today: Celebrating where life has taken her.

Today: Celebrating where life has taken her.

I can’t believe that moment was almost five years ago. In some ways it seems like yesterday and in other ways it seems like a lifetime ago.  Of course, me being me, I have taken a lot of time to reflect on what I’ve learned and how I have grown from this experience.  In some ways, my post cancer journey has been more difficult than being in ‘battle mode’.  Having cancer changed the course of my life and although I was unbelievably thankful that God healed me, I also had to ask, “Ok. I’m alive. Now what?” I was in my late thirties, divorced, unable to bear children, and completely lost.  Several years later, I’m still trying to figure it all out, but the greatest thing I have learned is that I am so blessed because although I may not know where my life is headed, I have a village. I have family, friends, neighbors, co-workers, students, parents, doctors, yogis, trainers, fellow survivor sisters, bloggers, and even former boyfriends who love and support me no matter what.

Continue reading

Hear My Voice: From Doctor to Patient, a Journey into Mets World

kelly headshot fall 2014Our December Hear My Voice blogger is Kelly Shanahan, MD, who writes about her shift from being a healthcare provider to being the person receiving health care for bone metastasis.  

I used to think the hardest thing I’d ever done was survive medical school and a 4-year ob-gyn residency at Temple University Hospital when the program was in chaos and we were short five (out of 20) residents. Then I was diagnosed with stage IIB breast cancer in 2008. Then the hardest thing I’d ever done was telling my not quite nine-year-old daughter I had cancer. “Mommy, are you going to die?” was her first question and my answer was “Yes, I’m going to die someday, and so is the cat and so is the dog, but I’m NOT going to die from breast cancer – I’m going to kick cancer’s ass!” Following treatment, I thought, in my arrogant doctor mode, that I was done. I beat the disease, I was a survivor! HA!

While walking upstairs one day in July 2013, I sneezed and immediately developed searing back pain. I ignored the pain, and when it didn’t improve, sought help from a massage therapist and my chiropractor. It didn’t get better and I figured I must have herniated a disc. I’d get an MRI eventually, and maybe one of those inversion tables would fix it. I was a busy gynecologist and I didn’t have time for any herniated disc or chronic back pain.

In a supreme twist of irony, I began subleasing my office to an oncologist one day a week. While dropping off supplies on the day he was there, he noticed me limping. “What’s wrong”, he asked. ”Oh, I think I herniated a disc”, I answered. He looked at me, and said, “You’ve had breast cancer. You need an MRI and a PET scan.” Yeah, yeah, I thought, I’ll get around to it when I have time.

I finally scheduled the MRI and PET for November 14, 2013. Not done with irony, this is my birthday. I figured after the PET scan, I’d go home and go out for a nice dinner with my husband and our daughter, 2 weeks shy of her own 15th birthday.

I had turned my phone off for the tests. First was the MRI, then the PET. Being a doctor who sends lots of patients to the imaging facility where I had the tests done, I knew I could review the results with the radiologist, confirm the herniated disc I just knew I had, stop at Costco on the way home and buy an inversion table and I’d be good as new in no time. HA again. When I went to my car after the PET, there was a message from the oncologist I sublease my office to; I had listed him as my doctor. “Kelly, call me, here’s my cell number” was the message. In that instant I knew I had metastatic disease. I went back into the imaging facility and went to see how bad it was: it was in every bone in my body. Glancing at my scans, my skeleton looked like Swiss cheese. Continue reading

‘Tis the Season for Giving

10478588_10204051655830539_1428283575535628673_nIn her role as Vice President of Advancement at Living Beyond Breast Cancer, Sandy Martin works directly with the community of individual donors and corporate partners whose financial support allows us to further our mission of connecting people to trusted breast cancer information and a community of support.

One of the things that I often admire most about the work we do at LBBC is the level of commitment to our mission that is shared by our constituency.  Recently, I was able to reflect again about how deep that commitment runs.

Over the last few weeks, as we have been preparing stories for our upcoming quarterly newsletter, Insight, this admiration struck me again.  That’s because an article in our Spring 2015 edition will feature personal reflections by some of our supporters about what LBBC means to them as well as why they feel it is important to give back to our organization.  One of these stories comes from Terry Frangiosa of Harleysville, Pennsylvania.  Terry, while not diagnosed with breast cancer herself, has been a long-time LBBC supporter who says “I attended my first LBBC conference with my sister, who was diagnosed with breast cancer at the age of 33.  We were both shocked and frightened by the diagnosis, especially because she was so young.   We left feeling empowered by the information we learned at that conference. As our knowledge grew our fear decreased and the conference became a part of my sister’s healing process.  Donating to LBBC’s Guardian Angel program, a service that offsets conference registration fees for those experiencing economic hardship, is my way to help others access the information and support they need and to make a difference in their lives. I know attending that conference years ago did exactly that for my sister and family.” Continue reading