Growing Initiatives for Metastatic Disease and LGB People Diagnosed with Breast Cancer

Catherine-Ormerod 1Catherine L. Ormerod, MSS, MLSP, LBBC’s Vice President of Programs and Partnerships, blogs about new resources and programs we developed for people living with metastatic breast cancer and LGB people affected by the disease.

This month, LBBC introduces two new initiatives to provide our brand of trusted information and support to two underserved populations in the breast cancer community: people living with metastatic breast cancer (MBC) and lesbian, gay and bisexual people diagnosed with breast cancer.

LBBC’s Hear My Voice Outreach Program will train 25 individuals from around the country and who are living with metastatic disease to connect others with resources, information and support for coping with stage IV breast cancer. Original LBBC research, confirmed by subsequent surveys, revealed that those living with MBC feel isolated, misunderstood and often unaware of programs and resources tailored to their experience. Other studies show that participation in peer outreach programs improves emotional health and well-being.

I see the power of connection at every one of LBBC’s conferences and thus I am very excited to begin the Hear My Voice Outreach Program at LBBC’s Annual Conference for Women Living with Metastatic Breast Cancer in April. We have already received many applications for the first Hear My Voice, so we know we have tapped into a large, unmet need.

Our second initiative centers on original content we developed to assist lesbian, gay and bisexual people living with breast cancer get the quality of care they need and deserve. For many, coming out to members of their healthcare team can be difficult or scary. The guide, which is the first of its kind for people with breast cancer, provides information, support and resources to help make having these conversations easier.

This guide, Getting the Care You Need as a Lesbian, Gay or Bisexual Person, is the first in LBBC’s new Breast Cancer inFocus series, which complement our longer guides about medical treatment and the physical and emotional side effects of an early-stage or metastatic breast cancer diagnosis. In addition to the physical brochure, our website lbbc.org features additional content for LGB individuals and our popular profiles of people living and coping with breast cancer. On the Web we also offer information for people who identify as transgender. Visit lbbc.org to read our content for LGBT people affected by breast cancer.

The next subject of our InFocus series is about men and breast cancer, which accounts for less than 1 percent of all breast cancers diagnosed.

The talented and dedicated LBBC staff is continually creating content in response to your needs, informing you of breaking news about cancer treatments and providing in depth features in a variety of formats to help you. Please drop me an email (info@lbbc.org) to let me know how we are doing and give me suggestions for new programs.

2 thoughts on “Growing Initiatives for Metastatic Disease and LGB People Diagnosed with Breast Cancer

  1. These two programs sound incredible. Education and getting people to talk to each other are two huge tools to help us live with our diagnoses. The LBBC does excellent work, especially in TNBC, which is where I am. Thank you!

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