Posts Tagged ‘newly diagnosed’

Your Breast Cancer Experience in Six Words

April 10, 2014

Last fall, we started a breast cancer six-word memoir campaign to share your thoughts and experiences with the disease. Beginning this month, we will restart the project for 2014. Read below to learn more and to see our collection of mini-memoirs from 2013.

Kim Boyer's Six-Word Memoir for Oct. 23, 2013

Kim Boyer’s Six-Word Memoir for Oct. 23, 2013

Everyone has a story. For people with breast cancer, that story can be a roller coaster of complex emotions. As an organization with a vision of a world where no one impacted by breast cancer feels uninformed or alone, we at Living Beyond Breast Cancer provide you with many ways to tell your story – first-person stories and videos, profiles, stories found on this blog and most recently, our breast cancer six-word memoirs. (more…)

Blog Back: Healing and Embracing Change After Breast Cancer

March 31, 2014

LynnFolkmanLynn Folkman, manager of our volunteer programs, wrote her Blog Back post  about her personal growth after reaching her 5-year “cancerversary.”  Read her story and check out our past Blog Back columns.

“Feels like some kind of wild ride but it’s turning out just to be life going absolutely perfectly.”

Every morning, while having my espresso, I view a piece of artwork with the above statement and allow it to resonate in me.

In March 2009, I was diagnosed with stage I ER, PR and HER2-positive breast cancer. I have always been a believer that things happen for a reason. Although certainly at the time, I could think of no good reason why breast cancer and chemotherapy would be on that list. As 2014 began, I was rapidly approaching my 5-year mark and found myself filled with a variety of emotions: joy, sadness, anxiety and fear. (more…)

This Week at LBBC: March 25 – April 1, 2014

March 25, 2014

This Week At LBBC Banner (2)
Welcome to our new blog column, “This Week in LBBC,” a weekly update of local and national events, programs and other initiatives by Living Beyond Breast Cancer.

National Programs and Initiatives

ANNUAL CONFERENCE FOR METASTATIC BREAST CANCER : We’re excited that registration opened for our eighth Annual Conference for Women Living with Metastatic Breast Cancer! Come join us Saturday, April 26 – Sunday, April 27, at the Philadelphia Marriot West in West Conshohocken, Pa. Register for the conference or apply for a travel grant and fee waiver. Visit to download a conference brochure.

TRIPLE-NEGATIVE BREAST CANCER WEBINAR SERIES: Learn more about triple-negative breast cancer during our free, two-part webinar series:

  •          Part One: Medical Update: On Thursday, April 17, from noon – 1 p.m. ET, featuring Rita Nanda, MD, who will help you understand today’s standard of care treatments for triple-negative disease.
  •          Part Two: Managing Fears of Recurrence: On Thursday, April 24, from noon – 1 p.m. ET, Julie Larson, LCSW, will discuss triggers of fears of recurrence and teach you strategies that will help you.


The Search for Common Ground In Advocacy

February 13, 2014

The U.K.-based Pancreatic Cancer Action launched a controversial public service announcement that got the attention of the media and cancer advocates worldwide. LBBC’s Janine E. Guglielmino, MA, director, publications and strategic initiatives, writes about the campaign, and the importance of finding commonality in the cancer advocacy community.

Many of you have already seen the controversial public service announcement “I Wish I Had …” from the U.K.-based Pancreatic Cancer Action. The video PSA opens with a man and a woman, newly diagnosed with pancreatic cancer, wishing they had been diagnosed with testicular or breast cancer instead. Next, scrolling text shows the 5-year overall survival rate for pancreatic cancer, which in the U.S. ranges from 14 percent in stage I to 1 percent in stage IV.

The ad is powerful, but it is also wrongheaded and insensitive. It paints breast cancer as a single disease, and reinforces the pervasive and incorrect belief that breast cancer survival outcomes are universally high. It minimizes the physical and emotional trauma breast and testicular cancers leave in their wake. And it dismisses the tragedy of the approximately 530,000 people worldwide who die each year from these two diseases. (more…)

“Coming Out” with Cancer – Breaking It To Your Friends

January 8, 2014

Screen Shot 2014-01-07 at 6 29 42 PMLBBC blogger Nikki Black was diagnosed last year with breast cancer at the age of 23. Here she discusses how she handled revealing her diagnosis to those close to her, and what she learned while doing so.

When I received the phone call from my doctor, I knew immediately she was about to give me the Bad News. Her long sigh and tight voice over the phone told me long before her actual words that I had tested positive for breast cancer.

“I’m sorry,” she said, “It’s hard, when the patient is so young.” Tell me about it.

As a young woman dealing with breast cancer, it can be difficult to break the news to your friends for a number of reasons – not the least of which is reliving the shock and sadness that comes with that diagnosis with every new phone call you make. I worried about how people would react and who was appropriate to tell. I worried that people would be upset with me for not telling them sooner, or telling them after I had told another person. I added anxiety on top of anxiety on top of that diagnosis during a time when I should have been focused on accepting the news myself.

So, if I can, I’d like to spare anyone this anxiety and share what I’ve personally learned about “coming out” with cancer to your friends.


#GivingTuesday Six-Word Memoirs: Part Three

December 3, 2013

You saw parts one and two. Here’s the third and final part of our #GivingTuesday breast cancer six-word memoir campaign. Support LBBC before midnight Eastern Time (ET) tonight!


Here’s our third and final round of breast cancer six-word memoirs for #GivingTuesday. On behalf of everyone at Living Beyond Breast Cancer, we want to thank everyone who submitted a six-word memoir about how we’ve impacted you and your breast cancer experience. Your mini-stories inspire us to continue and expand the work that we do. (more…)

#GivingTuesdays Six-Word Memoir: Part Two

December 3, 2013

This morning, we unveiled part one of our three-part breast cancer six-word memoir campaign for  #GivingTuesday. Here is part two. Don’t forget to double your impact with our #GivingTuesday matching campaign!


Like our six-word memoir series during Breast Cancer Awareness Month, the mini-stories you submitted have touched everyone here at Living Beyond Breast Cancer. We’re overjoyed so many of you were willing to write six-words about how our organization impacted you, or how you felt after using our programs and services.  (more…)

#GivingTuesday Six-Word Memoirs: Part One

December 3, 2013

Last week, we collected your six-word memoirs for our #GivingTuesday activities. Today, we’re unveiling them in three parts as you support us on this international day of giving.

We’ve notified you about our website and social media for the past week to let you know about our #GivingTuesday activities. As the match campaign begins, we’re proud to present our six-word memoir campaign for this day of giving. The gallery below contains the first of our three-part series.


Nothing Can Make This Stand Up Comedian Sit Down – Not Even Cancer

November 20, 2013


LBBC would like to welcome our newest blogger Nikki Black. Nikki was diagnosed with Stage 1 breast cancer 5 months ago at the age of 23. 

Five months ago I was sitting on the examination table in the office of my primary physician, waiting as she printed out the order for the next day’s ultrasound. “You don’t seem very concerned about this,” she said. I smiled and shook my head, comfortable under the veil of invulnerability that comes with youth. “That’s good,” she added, “I’m not too concerned either.”

I left her office reassured that the lump I had found while showering was most likely nothing, that the ultrasound would confirm this, that student loans would remain my biggest concern for the foreseeable future. I was 23-years-old; I had no family history. There was, at that moment, no cause for concern.

Unfortunately, the next day brought ultrasounds which were “suspicious”, which led to the mammograms, labeled “troubling”, and finally a biopsy, which became defining. A week after that doctor’s visit, I looked up at a bright June sky and tried to comprehend that my life would never be the same. I had breast cancer. (more…)

Living and Loving Life, One Step At A Time…

November 18, 2013

KelleeS01wKelly Southern is a vibrant 45 year old mother, wife, sister, daughter, aunt, cousin, friend who loves life and lives in Silver Spring, MD. She loves to read, dance and spend time with her family. She has 3 beautiful children: 2 boys ages 26 (Glenn) & 22 (Joshua) and 1 girl (Angelique) age 15. She has been married to her  best friend (Alvin) for 24 years. Her family is the most important thing to her and it’s the little things in life that make her happy, like laughter. When she hears them laugh, she is happy. Here she shares her story about her journey with breast cancer…

Kellee and I live in Silver Spring, MD. I received the shocker of my life in 2 parts. The first news came on my 45th birthday on Dec. 27, 2012 as I was told in my follow-up diagnostic mammogram that I have a lump that they were very worried about and I needed to get a biopsy as soon as possible. The doctor’s expression told me everything at that point, but I followed through the process of getting the first biopsy on my right breast only to receive the news on Jan 8, 2013, that I had Stage 3 Invasive Ductal Carcinoma, Right Axillary Lymph Node Metastatic Carcinoma and later tests also showed it in my Internal Mammary Lymph Nodes.

So after many doctor appointments and tests (BSGI, stereotactic biopsy on left breast, echocardiogram, PET/CT Scan), it was decided that my treatment plan would go as follows: chemo for 18 weeks (6 rounds, 1 every 3 weeks), mastectomy, radiation.

All of this information crowded into my little brain was serious information overload….WOW! Everything was moving so fast. Too fast. So many people were giving me information, sharing their stories or a story about somebody they knew. I was googling like I never had before. I was drained and getting depressed from everything I was reading and hearing. (more…)


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