Posts Tagged ‘metastatic breast cancer’

Your Breast Cancer Experience in Six Words

April 10, 2014

Last fall, we started a breast cancer six-word memoir campaign to share your thoughts and experiences with the disease. Beginning this month, we will restart the project for 2014. Read below to learn more and to see our collection of mini-memoirs from 2013.

Kim Boyer's Six-Word Memoir for Oct. 23, 2013

Kim Boyer’s Six-Word Memoir for Oct. 23, 2013

Everyone has a story. For people with breast cancer, that story can be a roller coaster of complex emotions. As an organization with a vision of a world where no one impacted by breast cancer feels uninformed or alone, we at Living Beyond Breast Cancer provide you with many ways to tell your story – first-person stories and videos, profiles, stories found on this blog and most recently, our breast cancer six-word memoirs. (more…)

This Week at LBBC: March 25 – April 1, 2014

March 25, 2014

This Week At LBBC Banner (2)
Welcome to our new blog column, “This Week in LBBC,” a weekly update of local and national events, programs and other initiatives by Living Beyond Breast Cancer.

National Programs and Initiatives

ANNUAL CONFERENCE FOR METASTATIC BREAST CANCER : We’re excited that registration opened for our eighth Annual Conference for Women Living with Metastatic Breast Cancer! Come join us Saturday, April 26 – Sunday, April 27, at the Philadelphia Marriot West in West Conshohocken, Pa. Register for the conference or apply for a travel grant and fee waiver. Visit lbbc.org/metsconference to download a conference brochure.

TRIPLE-NEGATIVE BREAST CANCER WEBINAR SERIES: Learn more about triple-negative breast cancer during our free, two-part webinar series:

  •          Part One: Medical Update: On Thursday, April 17, from noon – 1 p.m. ET, featuring Rita Nanda, MD, who will help you understand today’s standard of care treatments for triple-negative disease.
  •          Part Two: Managing Fears of Recurrence: On Thursday, April 24, from noon – 1 p.m. ET, Julie Larson, LCSW, will discuss triggers of fears of recurrence and teach you strategies that will help you.

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LIVING BEYOND BREAST CANCER HOSTS CONFERENCE

March 21, 2014

Annual-Conference-for-Women-BannerHaverford, PA., Friday, March 14, 2014– Philadelphia-based nonprofit organization Living Beyond Breast Cancer (LBBC) has opened registration for its 8th annual conference for women living with metastatic breast cancer.  The event, Enhancing Your Health and Quality of Life, takes place Saturday, April 26 – Sunday April 27, 2014 at the Philadelphia Marriott West in West Conshohocken, Penn.

Breast cancer is considered metastatic (stage IV) when it spreads from the breast to another part of the body such as the lungs, bones, liver or brain.  There are approximately 152,000 women in the United States currently living with metastatic breast cancer and estimates indicate that advances in treatment and care will push that number to 164,000 by the year 2015.(1)  (more…)

The Search for Common Ground In Advocacy

February 13, 2014

The U.K.-based Pancreatic Cancer Action launched a controversial public service announcement that got the attention of the media and cancer advocates worldwide. LBBC’s Janine E. Guglielmino, MA, director, publications and strategic initiatives, writes about the campaign, and the importance of finding commonality in the cancer advocacy community.

Many of you have already seen the controversial public service announcement “I Wish I Had …” from the U.K.-based Pancreatic Cancer Action. The video PSA opens with a man and a woman, newly diagnosed with pancreatic cancer, wishing they had been diagnosed with testicular or breast cancer instead. Next, scrolling text shows the 5-year overall survival rate for pancreatic cancer, which in the U.S. ranges from 14 percent in stage I to 1 percent in stage IV.

The ad is powerful, but it is also wrongheaded and insensitive. It paints breast cancer as a single disease, and reinforces the pervasive and incorrect belief that breast cancer survival outcomes are universally high. It minimizes the physical and emotional trauma breast and testicular cancers leave in their wake. And it dismisses the tragedy of the approximately 530,000 people worldwide who die each year from these two diseases. (more…)

Listening to the Voices of Those With Metastatic Breast Cancer

January 17, 2014

Catherine-Ormerod 1This week, articles published in the New York Times and The Guardian criticized blogger Lisa Boncheck Adams’ decisions to publicly write and tweet about her experiences with metastatic breast cancer.  Catherine Ormerod, Living Beyond Breast Cancer’s vice president, programs and partnerships, weighs in on this issue. 

This past Sunday former New York Times executive editor Bill Keller wrote an op-ed posing questions about Lisa Boncheck Adams’ public blog about her experiences with metastatic breast cancer. In particular, he questioned the choices she has made as a young wife and mother to extend her life as long as possible through, what Keller termed, “heroic measures”: taking treatments until they stop working and moving on to the next treatment. The treatment that Adams’ has pursued is, in fact, the standard way of treating metastatic disease. (more…)

#GivingTuesday Six-Word Memoirs: Part Three

December 3, 2013

You saw parts one and two. Here’s the third and final part of our #GivingTuesday breast cancer six-word memoir campaign. Support LBBC before midnight Eastern Time (ET) tonight!

20131203_KathiHansen

Here’s our third and final round of breast cancer six-word memoirs for #GivingTuesday. On behalf of everyone at Living Beyond Breast Cancer, we want to thank everyone who submitted a six-word memoir about how we’ve impacted you and your breast cancer experience. Your mini-stories inspire us to continue and expand the work that we do. (more…)

#GivingTuesdays Six-Word Memoir: Part Two

December 3, 2013

This morning, we unveiled part one of our three-part breast cancer six-word memoir campaign for  #GivingTuesday. Here is part two. Don’t forget to double your impact with our #GivingTuesday matching campaign!

20131203_TobyGelman

Like our six-word memoir series during Breast Cancer Awareness Month, the mini-stories you submitted have touched everyone here at Living Beyond Breast Cancer. We’re overjoyed so many of you were willing to write six-words about how our organization impacted you, or how you felt after using our programs and services.  (more…)

#GivingTuesday Six-Word Memoirs: Part One

December 3, 2013

Last week, we collected your six-word memoirs for our #GivingTuesday activities. Today, we’re unveiling them in three parts as you support us on this international day of giving.

We’ve notified you about our website and social media for the past week to let you know about our #GivingTuesday activities. As the match campaign begins, we’re proud to present our six-word memoir campaign for this day of giving. The gallery below contains the first of our three-part series.

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Giving Back to LBBC: Amy Lessack’s Story

November 27, 2013

The Tuesday after Thanksgiving will be the second annual #GivingTuesday, a national online initiative and day of giving back to charities, nonprofit organizations and important causes. Amy Lessack wrote this blog post on why she’s giving back to LBBC and why you should, too.

I recently learned about a national online initiative called #GivingTuesday and thought it was such a cool idea. The objective of the day is to have everyone everywhere donate or host charitable activities to benefit an organization of their choice the Tuesday after Thanksgiving.  Well, for me, the answer is easy:  Yes, of course I will “Give on Tuesday” and…my organization of choice is Living Beyond Breast Cancer (LBBC)!

LBBC does amazing things for women who are diagnosed with breast cancer and really for anyone who is impacted by the disease, including family members, friends, caregivers or healthcare providers. What makes LBBC a unique organization to gravitate to is the personal touch given by the staff and the services they offer.  LBBC offers webinars, community meetings and face-to-face conferences, as well as the Breast Cancer Helpline, which is staffed by survivors who lovingly answer calls and help where they can by just listening, offering support and resources – instead of just relying on “Dr. Google.”   (more…)

Blog Back: A Welcome Shift in Access to Healthcare Coverage

October 31, 2013

Welcome to October’s “Blog Back” column, a recent feature on the blog where the Living Beyond Breast Cancer staff write about their thoughts and experiences for you. This month’s columnist is Michelle Bielko, our Editor and Manager, Publications. In this “Blog Back” post, Michelle writes about her experience working on the Cancer Insurance Checklist, and what the shifting access in healthcare coverage means to her. 

As a volunteer emergency department liaison at a community hospital, too often I’ve overheard an individual in the throes of an emergent medical injury or illness exclaim with panic, “I don’t have health insurance. Will you still treat me?”, upon approaching the check-in desk. In those milliseconds before a patient registrar offers assurance that emergency care will be given regardless of insurance status, that individual often looks as if she or he fears hearing another set of words instead: “I’m sorry. In that case, we cannot treat you” — as if turning around and walking out the doors might be expected of her or him at a time of urgent medical need. (more…)


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