Posts Tagged ‘African-American’

Your Breast Cancer Experience in Six Words

April 10, 2014

Last fall, we started a breast cancer six-word memoir campaign to share your thoughts and experiences with the disease. Beginning this month, we will restart the project for 2014. Read below to learn more and to see our collection of mini-memoirs from 2013.

Kim Boyer's Six-Word Memoir for Oct. 23, 2013

Kim Boyer’s Six-Word Memoir for Oct. 23, 2013

Everyone has a story. For people with breast cancer, that story can be a roller coaster of complex emotions. As an organization with a vision of a world where no one impacted by breast cancer feels uninformed or alone, we at Living Beyond Breast Cancer provide you with many ways to tell your story – first-person stories and videos, profiles, stories found on this blog and most recently, our breast cancer six-word memoirs. (more…)

This Week at LBBC: March 25 – April 1, 2014

March 25, 2014

This Week At LBBC Banner (2)
Welcome to our new blog column, “This Week in LBBC,” a weekly update of local and national events, programs and other initiatives by Living Beyond Breast Cancer.

National Programs and Initiatives

ANNUAL CONFERENCE FOR METASTATIC BREAST CANCER : We’re excited that registration opened for our eighth Annual Conference for Women Living with Metastatic Breast Cancer! Come join us Saturday, April 26 – Sunday, April 27, at the Philadelphia Marriot West in West Conshohocken, Pa. Register for the conference or apply for a travel grant and fee waiver. Visit to download a conference brochure.

TRIPLE-NEGATIVE BREAST CANCER WEBINAR SERIES: Learn more about triple-negative breast cancer during our free, two-part webinar series:

  •          Part One: Medical Update: On Thursday, April 17, from noon – 1 p.m. ET, featuring Rita Nanda, MD, who will help you understand today’s standard of care treatments for triple-negative disease.
  •          Part Two: Managing Fears of Recurrence: On Thursday, April 24, from noon – 1 p.m. ET, Julie Larson, LCSW, will discuss triggers of fears of recurrence and teach you strategies that will help you.


The Search for Common Ground In Advocacy

February 13, 2014

The U.K.-based Pancreatic Cancer Action launched a controversial public service announcement that got the attention of the media and cancer advocates worldwide. LBBC’s Janine E. Guglielmino, MA, director, publications and strategic initiatives, writes about the campaign, and the importance of finding commonality in the cancer advocacy community.

Many of you have already seen the controversial public service announcement “I Wish I Had …” from the U.K.-based Pancreatic Cancer Action. The video PSA opens with a man and a woman, newly diagnosed with pancreatic cancer, wishing they had been diagnosed with testicular or breast cancer instead. Next, scrolling text shows the 5-year overall survival rate for pancreatic cancer, which in the U.S. ranges from 14 percent in stage I to 1 percent in stage IV.

The ad is powerful, but it is also wrongheaded and insensitive. It paints breast cancer as a single disease, and reinforces the pervasive and incorrect belief that breast cancer survival outcomes are universally high. It minimizes the physical and emotional trauma breast and testicular cancers leave in their wake. And it dismisses the tragedy of the approximately 530,000 people worldwide who die each year from these two diseases. (more…)

#GivingTuesday Six-Word Memoirs: Part Three

December 3, 2013

You saw parts one and two. Here’s the third and final part of our #GivingTuesday breast cancer six-word memoir campaign. Support LBBC before midnight Eastern Time (ET) tonight!


Here’s our third and final round of breast cancer six-word memoirs for #GivingTuesday. On behalf of everyone at Living Beyond Breast Cancer, we want to thank everyone who submitted a six-word memoir about how we’ve impacted you and your breast cancer experience. Your mini-stories inspire us to continue and expand the work that we do. (more…)

#GivingTuesdays Six-Word Memoir: Part Two

December 3, 2013

This morning, we unveiled part one of our three-part breast cancer six-word memoir campaign for  #GivingTuesday. Here is part two. Don’t forget to double your impact with our #GivingTuesday matching campaign!


Like our six-word memoir series during Breast Cancer Awareness Month, the mini-stories you submitted have touched everyone here at Living Beyond Breast Cancer. We’re overjoyed so many of you were willing to write six-words about how our organization impacted you, or how you felt after using our programs and services.  (more…)

#GivingTuesday Six-Word Memoirs: Part One

December 3, 2013

Last week, we collected your six-word memoirs for our #GivingTuesday activities. Today, we’re unveiling them in three parts as you support us on this international day of giving.

We’ve notified you about our website and social media for the past week to let you know about our #GivingTuesday activities. As the match campaign begins, we’re proud to present our six-word memoir campaign for this day of giving. The gallery below contains the first of our three-part series.


Living and Loving Life, One Step At A Time…

November 18, 2013

KelleeS01wKelly Southern is a vibrant 45 year old mother, wife, sister, daughter, aunt, cousin, friend who loves life and lives in Silver Spring, MD. She loves to read, dance and spend time with her family. She has 3 beautiful children: 2 boys ages 26 (Glenn) & 22 (Joshua) and 1 girl (Angelique) age 15. She has been married to her  best friend (Alvin) for 24 years. Her family is the most important thing to her and it’s the little things in life that make her happy, like laughter. When she hears them laugh, she is happy. Here she shares her story about her journey with breast cancer…

Kellee and I live in Silver Spring, MD. I received the shocker of my life in 2 parts. The first news came on my 45th birthday on Dec. 27, 2012 as I was told in my follow-up diagnostic mammogram that I have a lump that they were very worried about and I needed to get a biopsy as soon as possible. The doctor’s expression told me everything at that point, but I followed through the process of getting the first biopsy on my right breast only to receive the news on Jan 8, 2013, that I had Stage 3 Invasive Ductal Carcinoma, Right Axillary Lymph Node Metastatic Carcinoma and later tests also showed it in my Internal Mammary Lymph Nodes.

So after many doctor appointments and tests (BSGI, stereotactic biopsy on left breast, echocardiogram, PET/CT Scan), it was decided that my treatment plan would go as follows: chemo for 18 weeks (6 rounds, 1 every 3 weeks), mastectomy, radiation.

All of this information crowded into my little brain was serious information overload….WOW! Everything was moving so fast. Too fast. So many people were giving me information, sharing their stories or a story about somebody they knew. I was googling like I never had before. I was drained and getting depressed from everything I was reading and hearing. (more…)

Blog Back: A Welcome Shift in Access to Healthcare Coverage

October 31, 2013

Welcome to October’s “Blog Back” column, a recent feature on the blog where the Living Beyond Breast Cancer staff write about their thoughts and experiences for you. This month’s columnist is Michelle Bielko, our Editor and Manager, Publications. In this “Blog Back” post, Michelle writes about her experience working on the Cancer Insurance Checklist, and what the shifting access in healthcare coverage means to her. 

As a volunteer emergency department liaison at a community hospital, too often I’ve overheard an individual in the throes of an emergent medical injury or illness exclaim with panic, “I don’t have health insurance. Will you still treat me?”, upon approaching the check-in desk. In those milliseconds before a patient registrar offers assurance that emergency care will be given regardless of insurance status, that individual often looks as if she or he fears hearing another set of words instead: “I’m sorry. In that case, we cannot treat you” — as if turning around and walking out the doors might be expected of her or him at a time of urgent medical need. (more…)

Breast Cancer Awareness Month Recommended Reading, Part II: “It’s Not About the Hair” and “Things I’d Wish I’d Known”

October 30, 2013

In Part II of our three-part book review series for Breast Cancer Awareness Month (BCAM) 2013, Living Beyond Breast Cancer staff members take a turn reviewing books near and dear to their hearts. Lynn Folkman, manager of volunteer programs, writers about “It’s Not About the Hair: And Other Uncertainties of Life and Cancer,” by Debra Jarvis, Mdiv, and writer and web content coordinator Josh Fernandez reviews Deborah J. Cornwall’s “Things I Wish I’d Known: Cancer Caregivers Speak Out.”

It’s Not About the Hair: And Other Uncertainties of Life and Cancer (By Debra Jarvis, published by Sasquatch Books, 2008)

In the vast sea of breast cancer memoirs, I am happy to say “It’s Not About the Hair: And Other Uncertainties of Life and Cancer,” by Debra Jarvis, Mdiv, provides the reader with an infusion (no pun intended) of humor. Debra combines her self- deprecating humor, spiritual nature and no-nonsense voice to produce a witty, tender memoir about her breast cancer experience. I am one who loves to discover and read about lessons, be it my own or others. Debra as an ordained minister weaves stories of patients she’s seen, along with her own cancer journey, to reveal wonderful nuggets of insights throughout the book.

Her voice and sense of humor are true to herself. She writes about the expanse and range of emotions that individuals experience during a diagnosis of cancer. Debra respects that everyone has their own journey and her job as a chaplain is to assist people in finding their own way to their own truth. Debra says, “It means you feel your feeling, give that a voice, and then move on.” (more…)

Breast Cancer Awareness Month Recommended Reading, Part I: “Butterfly Wishes on Wings” and “It’s Always Something”

October 29, 2013

As Breast Cancer Awareness Month (BCAM) 2013 comes to a close, our dedicated staff, volunteers and contributors want to share recommended reading that will inspire you, make you laugh and, above all, help you realize you are not alone. First up, regular blog contributor Ronda Walker Weaver and LBBC board member and long-time volunteer, Margaret Zuccotti, review books that have personally impacted them during their breast cancer journeys. Margaret reviews “Butterfly Kisses and Wishes on Wings: When someone you love has cancer…a hopeful, helpful book for kids,” written by Ellen McVicker and illustrated by Nanci Hersh, and Ronda writes about the late comedienne and Saturday Night Live performer Gilda Radner’s “It’s Always Something.”

Butterfly Kisses and Wishes on Wings: When someone you love has cancer…a hopeful, helpful book for kids (Written by Ellen McVicker and illustrated by Nanci Hersh, self-published 2008)

“The other day my mom went to the doctor. She didn’t even look sick, but she said she had to go anyway.” And so opens the story “Butterfly Kisses and Wishes on Wings-When someone you love has cancer…a hopeful, helpful book for kids” written by Ellen McVicker and illustrated by Nanci Hersh.



Get every new post delivered to your Inbox.

Join 183 other followers