Archive for the ‘San Antonio Breast Cancer Sympoisum’ Category

Our New Vision and Mission

August 20, 2013

2012JeanSachsHeadshotVer2Web

This morning, Living Beyond Breast Cancer’s CEO Jean Sachs released the following message to our friends and supporters:

Dear Friends:

All of us at Living Beyond Breast Cancer are excited to share our new vision and mission statements with you:

Our new vision

A world where no one impacted by breast cancer feels uninformed or alone.

Our new mission

To connect people with trusted breast cancer information and a community of support.

These new statements were developed with the help of over 1,200 of you who responded to a survey we sent out earlier this year. Your input was used in a day-long retreat with members of the board of directors and staff. We learned what LBBC services are valued most and why so many have come to depend on our educational programs and services that allow for connection to others diagnosed with breast cancer.

For me, these new statements say with clarity what we strive to do every day and what we hope to achieve over time. Yesterday, I spoke with a long-time friend who had just been diagnosed with breast cancer.  She was overwhelmed, scared and shocked. Our conversation and the resources I was able to put in her hands grounded her and provided her with enough comfort and confidence to take the next step.

This is what LBBC does every day, and it is exactly what the new vision and mission statements express.

I hope you share my enthusiasm and, as always, if you have comments I would love to hear from you.

Warmly,

Jean 

Jean A. Sachs, MSS, MLSP

Chief Executive Officer

LBBC

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part Eight

April 27, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


This final video tackles a discussion on the use of the color “pink” and what that means in the metastatic breast cancer community.

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part Eight

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register  for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part Seven

April 23, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


This seventh discusses communication and the Doctor/Patient relationship.

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part Seven

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register  for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part Six

April 20, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


This sixth video tackles the discussion on metastatic breast cancer research.

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part Six

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part Five

April 16, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


This fifth video tackles the discussion on diversity in the metastatic cancer community.

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part Five

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part Four

April 13, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


This fourth video discusses access to information, medical treatment, and insurance coverage.

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part Four

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part Three

April 9, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


These two videos discuss relationships with your healthcare providers and considering the variety of medical treatments.

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part Three A

Video Link: Metastatic Breast Cancer Discussion – Part Three B

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part Two

April 6, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


This second video tackles semantics and word choice with the metastatic breast cancer community, particularly the word “survivor.”

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part Two

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

Video Blog Series: Advocacy in Action on Metastatic Breast Cancer – Part One

April 2, 2012

On April 28th and 29th, 2012, Living Beyond Breast Cancer will host its Sixth Annual Conference for Women Living with Metastatic Breast Cancer which is a one-of-a-kind educational program designed for women living with metastatic disease, caregivers and healthcare providers. During the four weeks before the event, the LBBC blog will feature a series of short videos featuring our own Elyse Spatz Caplan, Director of Programs and Partnerships,  with Advocacy in Action discussing the needs of women living with metastatic breast cancer.


This first video tackles the initial reaction to learning about metastatic breast cancer and the relevance of clinical trials.

Elyse Spatz Caplan, MA, Director, Programs and Partnerships

Video Link: Metastatic Breast Cancer Discussion – Part One

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Visit our website for more information on the Conference for Women Living with Metastatic Breast Cancer and to Register for the April event. Additional resources can be found through LBBC’s Understanding Guides: Metastatic Breast Cancer Series.  Later this year, LBBC will produce a guide for women newly diagnosed with advanced disease.

The best advocate? Yourself.

January 4, 2010

This entry was written by Elyse Spatz Caplan, MA, our director of Programs & Partnerships.

As we move into a new year, some of you may be feeling overwhelmed. You’ve been diagnosed with breast cancer and have to make significant decisions about treatment. You may be asking yourself: what should I do? What is the right decision for me? What do the experts say?

Remember: you have options. Presenting your personal goals to your physicians can help them design plans that effectively treat breast cancer while preserving your quality of life.

In December, we grappled with these issues at the 32nd annual San Antonio Breast Cancer Sympoisum (SABCS), where Living Beyond Breast Cancer manned (or should I say “wo-manned”) an exhibit table. Nearly 10,000 researchers and physicians from more than 80 countries convened at this four-day meeting to present the year’s most interesting research findings and to discuss implications and possibilities for future research. Advocates are highly valued at SABCS, which is why non profit, survivor-focused, organizations (like us!) are offered complimentary exhibit tables so that others can learn more about what we do.

As an 18-year breast cancer survivor, it is always amazing to see so many people come together to discuss how we can improve treatment for women with breast cancer. While we work hard with the scientific community to advance the prevention and treatment of women and families affected by breast cancer, it is not enough to simply look at the medical aspects of care. What good is all of this if the treatments developed to prevent or treat breast cancer cause side effects or other problems that significantly impact one’s day-to-day life?

It’s also important to look at the way women go about receiving care. I have watched the paradigm shift over the past decade and even longer… there is no longer a physician-directed approach to care but rather a more patient-directed approach that involves a lot of conversation between physicians and the women who consult with them. Quality of life is an important endpoint for many women and men and was never really discussed before. I’m seeing more and more women becoming advocates for their bodies, their health, their lives.

And so, we usher into 2010 with hope and optimism for improved methods of diagnosis, new techniques to treat breast cancer, and more attention to the psychosocial concerns of women living with a history of breast cancer.

Get more from SABCS at our free teleconference this Wednesday–January 6. Listen by phone or online without leaving home. Ask questions and get the answers you need for the stage you’re at. We’re here to help you get the most up-to-date information in order to have the best quality of life possible.

 

 

 

 

 

 

 

 

 

 


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