Archive for the ‘Living Beyond Breast Cancer’ Category

Yoga on the Steps: Philadelphia Kickoff!

January 15, 2014

Yoga Peach YOTSReturning blogger, yogi and friend of LBBC, Keli Engelson -aka Yoga Peach- dishes about her excitement and passion for Yoga on the Steps and raising funds for people affected by breast cancer. Want to join in? Register Today!

On May 18, 2014 LBBC will host it’s signature education and fundraising event Yoga on the Steps on the historic steps of the Philadelphia Art Museum.  The one hour class is an all-levels yoga class and afterwards participants are encouraged to attend the Healthy Living Expo where local and national health and fitness vendors display their products and services.   Information about local area nonprofit and service organizations is also provided. Yoga on the Steps educates communities about healthy living and quality of life issues and all funds will benefit Living Beyond Breast Cancer’s education and support resources.

I’m looking forward to this year’s event.  I am extremely passionate about yoga and being able to volunteer, raise funds and share something I love with the community to support LBBC is meaningful to me. This will be my third year to attend Yoga on the Steps.  The energy of nearly 2,000 people gathering on the steps of the art museum to support LBBC is an exciting and moving experience. It is extremely fulfilling to combine health and wellness for such an important cause so I hope to see even more people at Yoga on the Steps in Philadelphia this year!

Keli Engleson, “Yoga Peach” is a registered yoga instructor, certified birth doula, and triathlete.   She also arranges destination weddings and yoga retreats in Belize.  Keli enjoys blogging about yoga, health and wellness.  She also shares healthy recipes and personal stories through her journey in yoga and fitness.  http://www.yogapeach.com

#GivingTuesday Six-Word Memoirs: Part One

December 3, 2013

Last week, we collected your six-word memoirs for our #GivingTuesday activities. Today, we’re unveiling them in three parts as you support us on this international day of giving.

We’ve notified you about our website and social media for the past week to let you know about our #GivingTuesday activities. As the match campaign begins, we’re proud to present our six-word memoir campaign for this day of giving. The gallery below contains the first of our three-part series.

(more…)

Blog Back: A Welcome Shift in Access to Healthcare Coverage

October 31, 2013

Welcome to October’s “Blog Back” column, a recent feature on the blog where the Living Beyond Breast Cancer staff write about their thoughts and experiences for you. This month’s columnist is Michelle Bielko, our Editor and Manager, Publications. In this “Blog Back” post, Michelle writes about her experience working on the Cancer Insurance Checklist, and what the shifting access in healthcare coverage means to her. 

As a volunteer emergency department liaison at a community hospital, too often I’ve overheard an individual in the throes of an emergent medical injury or illness exclaim with panic, “I don’t have health insurance. Will you still treat me?”, upon approaching the check-in desk. In those milliseconds before a patient registrar offers assurance that emergency care will be given regardless of insurance status, that individual often looks as if she or he fears hearing another set of words instead: “I’m sorry. In that case, we cannot treat you” — as if turning around and walking out the doors might be expected of her or him at a time of urgent medical need. (more…)

Breast Cancer Six-Word Memoirs for BCAM 2013 – Week of Oct. 13

October 23, 2013

You’ve submitted them, and we’ve posted them – here’s week three of LBBC’s breast cancer six-word memoirs! Inspired by Smith Magazine’s project, the Six-Word Memoir, we’ve started a campaign to highlight your experience with breast cancer using the six words that best describe your journey (or an aspect of it). This campaign is ongoing throughout Breast Cancer Awareness Month.

Marsha Wheatley's Six-Word Memoir for Oct. 17, 2013.

Marsha Wheatley’s Six-Word Memoir for Oct. 17, 2013.

We are now in week three of our month-long BCAM breast cancer six-word memoir campaign. We thank everyone who has contributed to this project so far — your stories continue to move and inspire us!

(more…)

The Annual Fall Conference Is This Weekend!

October 22, 2013

randi rentzLong-time LBBC blogger Randi Rentz will be attending her very first fall conference hosted by LBBC! After receiving her brochure in the mail weeks ago after much anticipation, Randi shares with us what she’s looking forward to the most…

I am super excited to attend Living Beyond Breast Cancer’s Annual Fall Conference on October 26th and October 27th at the Double Tree Hotel in Philadelphia. Wowsy. I can’t wait to get the latest information on breast cancer from some of the nation’s top experts.

Did you know Suzanne Dixon, MPH, MS, RD is one of the speakers? She is an internationally recognized expert in nutrition, chronic disease prevention, public health, and epidemiology, with over 150 invited lectures to professional and consumer audiences. Double WOWZA! (more…)

Introducing My+Story

October 10, 2013

Kevin Gianotto is the associate director of marketing, public relations and corporate partnerships at Living Beyond Breast Cancer.  He’s worked for nonprofit organizations since 2002.

Two weeks ago, I attended a reception at the Dover International Speedway where I had the chance to introduce a number of individuals I met to the work we do at LBBC to connect people to trusted breast cancer information and a community of support.  The conversations I had that evening inevitably led to the opportunity for me to discuss what I am most passionate about here at LBBC –women who have been diagnosed with metastatic breast cancer, many of whom have become close friends, and the educational resources and support services LBBC has available for them.

52792_10151113120997285_1062790530_oMetastatic breast cancer—a form of advanced breast cancer also referred to as stage IV breast cancer—occurs when breast cancer has spread to other parts of the body.  Approximately 159,000 women in the United States are currently living with metastatic breast cancer, and this number is projected to increase to approximately 164,000 by the year 2015.

To raise awareness of Metastatic Breast Cancer Awareness Day on October 13, LBBC has partnered with the MedImmune Specialty Care Division of AstraZeneca to promote the launch of My+Story, an online resource center which highlights the needs of women living with metastatic breast cancer and calls attention to metastatic disease as a key component of October’s National Breast Cancer Awareness Month. Metastatic Breast Cancer Awareness Day was officially recognized by the U.S. Congress in 2009, following a grassroots awareness effort led by members of the Metastatic Breast Cancer Network (MBCN).

The My+Story site houses tools and information tailored for women living with advanced disease. The website is designed to connect patients with the information they need, and links to patient support groups that have specific programs for metastatic breast cancer patients—like LBBC and MBCN.

Visitors can learn about metastatic breast cancer and treatment options, find tips on how to take care of their bodies, and celebrate their life experiences by creating a hard copy photobook of personal stories that may be shared with loved ones. Women with metastatic breast cancer and those who are directly inspired by them can also create a personalized flower badge that can be shared at MyMBCStory.com and with their personal social media community to help raise awareness. In addition, supporters of women with metastatic breast cancer can visit MyMBCStory.com/awareness to download free educational materials and inspire members of their community to help raise awareness of the disease.

Other great interactive features (ones my social media team here at LBBC love) allow visitors to share their favorite images and information from the site with others via Facebook, Twitter and Pinterest. And, throughout the month, AstraZeneca will make a contribution to LBBC and MBCN each time visitors share content (up to a total of $28,000) in acknowledgment of the 28 years since National Breast Cancer Awareness Month was established and of the ongoing effort to bring metastatic breast cancer to the forefront. If you’re inclined, be sure to check out the site and let us know what you think.

Breast Cancer Six-Word Memoirs for BCAM 2013 – Week of Oct. 1

October 9, 2013

We at Living Beyond Breast Cancer want to make sure women with breast cancer have opportunities to tell their stories and inspire others in October and beyond. Feeling inspired by Smith Magazine, the creators of the Six-Word Memoir project, LBBC is collecting and posting your six-word memoirs as part of our BCAM efforts.

MaryGrace Mastroddi's Six-Word Memoir for Oct. 3, 2013.

MaryGrace Mastroddi’s Six-Word Memoir for Oct. 3, 2013.

We are very impressed with the number of breast cancer six-word memoirs we’re getting via email.

(more…)

Unveiling the Cancer Insurance Checklist!

September 27, 2013

As we find ourselves just a few days away from the opening of states’ Health Insurance Marketplaces/Exchanges established as part of the Affordable Care Act (ACA), Living Beyond Breast Cancer is pleased to announce the launch of the Cancer Insurance Checklist, a resource developed in partnership with 18 other cancer and healthcare advocacy organizations, with the generous financial support of Novartis Oncology. 

Cancer Insurance Checklist_Banner Ad_FINAL

An estimated 7 million uninsured or underinsured people will be using the Health Insurance Marketplaces/Exchanges  to obtain health insurance coverage in 2014. Knowing this, Living Beyond Breast Cancer is pleased to present the Cancer Insurance Checklist , a tool designed with several partner organizations specifically to help those with a history of, at risk of developing, or presently diagnosed with cancer find the insurance plan within their budget that best meets their healthcare coverage needs.

(more…)

Blog Back: On Helping to Shape the New Mission and Vision

September 17, 2013

 

Shaffer-Anna_mediumWelcome to “Blog Back,” a new monthly column where the Living Beyond Breast Cancer staff  change up the LBBC Blog and write about their thoughts and experiences for you. Our September columnist is Anna Shaffer, our Editor and Manager, Web Content. Anna joined LBBC in 2005, and has seen the national nonprofit grow in many ways. In this edition of “Blog Back,” Anna writes about her experience collaborating with fellow staff and the board of directors to revise LBBC’s mission and vision statements. 

A couple of months ago, I was privileged to participate in a board and staff retreat to brainstorm a new mission and vision statement for LBBC. It made me think not only about how much the organization has grown since I became part of the staff in 2005, but also about what drew me to work for LBBC in first place: our focus on providing the education and support a woman needs after she is diagnosed with breast cancer.

(more…)

Our New Vision and Mission

August 20, 2013

2012JeanSachsHeadshotVer2Web

This morning, Living Beyond Breast Cancer’s CEO Jean Sachs released the following message to our friends and supporters:

Dear Friends:

All of us at Living Beyond Breast Cancer are excited to share our new vision and mission statements with you:

Our new vision

A world where no one impacted by breast cancer feels uninformed or alone.

Our new mission

To connect people with trusted breast cancer information and a community of support.

These new statements were developed with the help of over 1,200 of you who responded to a survey we sent out earlier this year. Your input was used in a day-long retreat with members of the board of directors and staff. We learned what LBBC services are valued most and why so many have come to depend on our educational programs and services that allow for connection to others diagnosed with breast cancer.

For me, these new statements say with clarity what we strive to do every day and what we hope to achieve over time. Yesterday, I spoke with a long-time friend who had just been diagnosed with breast cancer.  She was overwhelmed, scared and shocked. Our conversation and the resources I was able to put in her hands grounded her and provided her with enough comfort and confidence to take the next step.

This is what LBBC does every day, and it is exactly what the new vision and mission statements express.

I hope you share my enthusiasm and, as always, if you have comments I would love to hear from you.

Warmly,

Jean 

Jean A. Sachs, MSS, MLSP

Chief Executive Officer

LBBC


Follow

Get every new post delivered to your Inbox.

Join 181 other followers