Archive for the ‘breast cancer’ Category

It’s About You: Kate Garza’s Story

August 26, 2014

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KateGarza2 for 5 28Kate Garza is back with a new blog post for our fall conference blogging series, It’s About You. The yoga instructor, writer, wife and mother of three discusses the “breast cancer journey” concept, while discussing her own and her anticipation of Breast Cancer Today: Individual Treatments, Shared Experiences.

Everyone calls it a journey – the breast cancer journey. And if I weren’t so sick of that term, I would use it, too. It is descriptive to a point, and it allows other people to remember that you are not living the life you had in mind anymore. But this so-called “journey” is really more the life equivalent of being kidnapped, thrown into the trunk of a car and driven in the dark to an unknown location. That’s the image that flares in my mind anyway, when I hear “journey with breast cancer,” a junket with only sketchy clues about where you may end up. 

I was diagnosed with stage II invasive breast cancer at age 53, almost 2 years ago now, when my kids were 15, 16 and 17 years old. Life would have been complex enough with three kids moving up and out, but throw breast cancer on top of that project and I had more moving parts than I could track with sophisticated software. 

I had a fairly garden variety diagnosis of estrogen receptor-positive/HER2-negative breast cancer. I followed the standard treatment with lumpectomy, 8 cycles of chemo and 30 doses of radiation therapy. It was the most difficult health crisis I had run across in my life and treatment left me exhausted and brain-fried, but grateful that I traversed without complication. I finished a week before number one graduated from high school. After a month off for R&R, I began taking an aromatase inhibitor (AI), letrozole. 

After 3 months of difficult joint pain side effects, I switched to anastrozole. Again, the difficulties with pain and mobility arrived, but I stayed with the second medicine for 6 months until, completely frustrated and full of pain with every movement, I gave up. I was done. I couldn’t see the point of prolonging a life that felt this bad. Did I mention that I am a yoga instructor? I couldn’t move. Not even enough to practice the yoga that might help me feel better. And working, in my chosen profession, was out of the question. So by the time my second child graduated this past June, I was 2 months into my medication vacation and starting to feel much better. I could move again. Pain with walking and the sleepless nights were beginning to fade away.  (more…)

It’s About You: Laura Ross’ Story

August 15, 2014

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LBBC would like to introduce our newest guest blogger Laura Ross. Today she shares her breast cancer journey and how she became familiar with LBBC’s programs and services, specifically our annual Fall conference.

Driving on I-95 South in Philadelphia, late October 2011, I passed a billboard for Breast Cancer awareness month. “Ah” I said, “I never want to be part of that club!” One month later I would be handed my membership, and would begin a journey that changed my life.

November 18, at age 41, while snuggling my 3-year-old daughter Aliya, her head hit a hard pea sized spot in my upper right breast. Calling my other daughters, Gianna and Isabella, into the room, I asked them if they could feel it too, and indeed, they said they could. I didn’t really think too much of it. I had never even had a mammogram. I called my gynecologist and made an appointment. She too, could feel it, and scheduled the mammogram for early December.

After the testing was over, the doctor who performed the biopsy looked at me and said, “This is definitely breast cancer, when you get the results on Monday expect it to be cancer.” Uh. OK. I was completely shocked. I was completely alone. (more…)

At 17 Weeks Pregnant The Verdict Was In: Breast Cancer

August 7, 2014

imageToday we’d like to introduce our newest LBBC blogger, Stephanie Hulse, who was diagnosed with Stage 3 Triple-Negative breast cancer at 17 weeks pregnant. Here she shares her story about navigating her diagnosis and treatment while pregnant with her 4th child…

Our family was almost complete. My husband and I agreed early on that we wanted to have a lot of children and we simply adored the 3 that we had, so you can imagine how excited we were when we found out that baby number 4 was on the way! Our children were young at the ages of 6, 4 and 1 so we waited until the second trimester to tell them about the new baby and we waited a few weeks more to tell our families. Everyone was SO excited. It’s because of the new baby that I was seen by my midwife; I knew a I had a lump in my left breast but since I was breastfeeding I thought it was a blocked duct. The lump had been there for quite some time and cancer had never crossed my mind. They urged me to try to massage it to unblock the duct, so I did, and it grew. This immediately raised a red flag for my midwife who urged me to have a biopsy. I went, and at 17 weeks pregnant, the verdict was in: Breast Cancer.

On January 22, 2013 my world stopped as I spoke to my midwife over the phone. “It looks like your biopsy will need some follow-up” she told me, “you’ll want to write this down.”  It’s amazing how my hand kept writing the words she was telling me, but my mind had stopped paying attention to what she was saying. Invasive Ductal Carcinoma. “Carcinoma, that sounds like cancer” I thought to myself, while continuing to write. That’s when it began to sink in. The lump that I had was cancerous? How could that be? I’m 30! I have no family history of cancer! And on top of everything else, I’m pregnant. As I’m writing down information about Triple-Negative breast cancer, I can feel the baby kicking inside me. So many things ran through my mind all at once, not only about my fate, but her fate as well. My husband walked through the door and he instinctively knew the news was bad; between sobs, I was able to choke together the words “it’s cancer”.
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Li-Fra-What?

August 5, 2014

IMG_2502LBBC guest blogger Kate Crawford’s family was no stranger to cancer of all types, but after she was diagnosed at the age of 28 with HER2 + metastatic breast cancer the family started to wonder if genetics were to blame and urged her to undergo genetic testing. Today she shares her story on making the decision to have genetic testing and how that affected her and her family, including her young children. 

I was 28. I had no family history of breast cancer, but had a family history of cancer in general. My mother was diagnosed with thyroid cancer at 27, my grandmother died as a result of an incurable brain tumor and my grandfather had pancreatic cancer. One thing everyone pondered when I was diagnosed was: why? Why would an overall healthy young woman present with metastatic breast cancer? It is an extremely personal decision to have genetic testing. More than half of gene mutations are hereditary which means a diagnosis of an abnormality may mean your mother, sister, niece, cousin or your child could also be at risk.
I was worried about my children and decided to meet with the oncology genetic counselor in early 2013. It was one of the most informative meetings I had concerning my diagnosis. She explained to me how genetics play a role in cancer. Genes are fragments inside of cells, which are in chromosomes, and made of DNA. DNA contains the instructions for building proteins, which controls the how the cells make up your body. If there is a mistake in one of your genes, those cells will not grow and function properly which can lead to genetic abnormalities, like being more prone to develop certain cancers. She suggested that I be tested for the popular BRCA 1 & 2 gene mutations. A simple blood test and a little bit of waiting revealed that I was negative for a BRCA abnormality. “I would like to have you tested for one more thing.” she quietly stated, “Li-Fraumeni Syndrome”. “Li-Fra-what?” I asked. (more…)

Getting On Track – LBBC’s Reimagined Fall Conference

July 30, 2014

emailHeader760x160Our annual fall conference features three tracks because breast cancer is not just one disease. Clifford A. Hudis, MD, chief of the breast medicine service and attending physician at Memorial Sloan Kettering Cancer Center in New York City, wrote this blog post about the reasons for these tracks and how breast cancer treatment became more individualized. A member of LBBC’s medical advisory board, Dr. Hudis will lead our morning plenary session on metastatic breast cancer. 

Hudis_lbbcblogpostGiven LBBC’s recognition that not all breast cancer is the same and not all patients need the same information, it is natural to see that the annual fall conference, Breast Cancer Today: Individual Treatments, Shared Experiences, is organized in tracks that enable participants to most efficiently focus on what they find to be most relevant. 

Not Just One Disease

Starting with oncology pioneer George Beatson’s 1896 report that some, but not all, women with advanced breast cancer responded to treatment that reduces estrogen in the body, it was clear that we confront more than one, uniform disease. The subsequent description of the estrogen receptor by cancer researcher Elwood Vernon Jensen in 1958 simply allowed us to test for what we already knew – that some cancers are more or less likely to respond to hormone therapies.

The more recent description of the human epidermal growth factor receptor–2 (HER2) and the development of effective treatments that target it added another dimension to “binning” breast cancers. With effective hormone and anti-HER2 therapies we can no longer pretend that cancer is cancer is cancer. One size does not fit all, and one disease is not the same as another.  (more…)

It’s About You: Lu Ann Cahn’s Story

July 23, 2014

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  Cahn_photo2014We would like to introduce you to our blogging series, “It’s About You.” In addition to telling you their personal story, our bloggers in this series talk about their experience with past LBBC programs and/or their anticipation for the upcoming fall conference, Breast Cancer Today: Individual Treatments, Shared Experiences. Today, NBC10 reporter Lu Ann Cahn kicks off the series by sharing her breast cancer journey and the importance of connecting with individuals who share your experiences.

I was talking to a woman who just got through her second year of survivorship. We’d made a lunch date to talk about work, business opportunities.

I’d almost forgotten she’d had breast cancer until she mentioned she was dealing with horrendous hot flashes.

“The tamoxifen is making me crazy” she said.

“How are you feeling otherwise?” I asked

” Oh fine. I just want to forget about IT and move on.”

The IT she didn’t want to dwell on was Breast Cancer…and yet we spent the last twenty minutes we had together during our meeting, sharing our experiences, listening to each other.

I wished we’d started talking about it sooner. As much as she wanted to “forget”, I could tell it was a relief for her to talk to someone who has been there; someone who you don’t have to explain too much to, so much is already understood.

Her emotions were close to the surface; which is probably why she said she wanted to “forget about it”. Tears welled up in her eyes as she talked about how terrifying it’s been, the diagnosis, newly remarried, with a teen son.

I know . I remember.

It has been 23 years since I was diagnosed with an aggressive breast cancer. My daughter was four years old. The year before breast cancer, I was hospitalized for 5 months. I had to have my colon removed because of severe ulcerative colitis. I was just recovering and feeling better when I started to feel a vague mass in my right breast. (more…)

LBBC’s Annual Fall Conference is for You!

July 16, 2014

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LBBC’s Annual Fall Conference, Breast Cancer Today: Individual Treatments, Shared Experiences, has a new look and feel. Catherine Ormerod, VP of Programs and Partnerships shares her highlights for the conference, taking place on Saturday, September 27, 2014 Philadelphia, PA.

Catherine-Ormerod 1Breast cancer research and treatments are constantly changing. It can be difficult to stay current with and understand the impact of these changes on you and your life. That’s why we have adapted this conference to connect you to trusted specific information. Consulting with some of the nation’s leading health specialists, this year’s conference will offer tracks to help you access the specific information that you’re seeking.

At the Breast Cancer Today: Individual Treatments, Shared Experiences conference you will get the unique medical information you seek for your specific type of breast cancer, while connecting you to others in a supportive environment. Our tracks are:

  • Triple-negative: presented in partnership with Triple Negative Breast Cancer Foundation
  • Hormone receptor-positive or HER2-positive
  • Metastatic

You can choose to follow a track or attend individual sessions based on your diagnosis or concerns. Our sessions will include information about the latest in breast cancer news, treatments and care and wellness. They will be presented by renowned breast cancer experts such as Virginia Borges, MD, MMSc; Clifford A. Hudis, MD; Rita Nanda, MD and Marisa C. Weiss. Topics will range from targeted therapies, metastatic breast cancer clinical trials, managing the side effects of chemotherapy and more, plus an engaging closing plenary, Thriving! A Discussion on Living Well – Body, Mind and Soul.

Attending a conference is a great way to not only get the latest information, but to connect with others and build a community of support. We often hear how long lasting friendships were created at LBBC conferences. I encourage you to take advantage of the many ways to share your experience – there will be breaks throughout the day, a special luncheon, closing reception and meetup groups organized by shared interests.

Registration for the conference is $50 per person but if you register before September 5th you will receive our early-bird discounted rate of $40 per person. We offer a limited number of travel grants and fee waivers on a first come, first served basis. Special thanks to Triple Negative Breast Cancer Foundation’s for its support of travel grants to women diagnosed with triple-negative disease.

Visit lbbc.org/fallconference to register for the conference, apply for a fee waiver or travel grant and to learn more about our speakers and conference sessions.

I hope you can join us in Philadelphia this September!

Catherine Ormerod
VP, Programs and Partnerships, Living Beyond Breast Cancer
cormerod@lbbc.org
P.S. – Follow #LBBCconf on Facebook, Twitter and Instagram for conference updates, staff picks on where to eat in our hometown of Philadelphia, what to see and much more!

I loved everything about Yoga on the Steps: Kansas City

July 9, 2014

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Wendy Hazlett, LBBC friend and long-term Silpada Field Development Director of the Northeast Region shares her breast cancer story and why she’s looking forward to LBBC’s Yoga on the Steps: Kansas City for the 2nd year in a row! 

 

I was diagnosed with breast cancer in June 2011.  It was through a routine mammogram and I still thank God each day for the expertise of my radiologist!  I never thought “why me?”, but instead jumped right in to “beat this”.  We had been thoughtfully watching a lump on my left breast throughout the years, so when the mammogram came back saying that I had cancer in my right breast and my surgeon recommended double mastectomies, I followed the recommendation and had a successful surgery in August 2011.

 

I had my first reconstruction surgery that December – which my body rejected.  This caused me to undergo 3 additional surgeries before being able to close this chapter in my life in December 2012.

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Podcasts and Presentations on lbbc.org: Learning About Breast Cancer When it’s Convenient for You

July 3, 2014

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If you missed a Living Beyond Breast Cancer community meeting, webinar or other educational event, you can find that program’s podcast and/or presentation on lbbc.org. Learn about the LBBC Event Archive and check out a few podcasts and presentations from recent events. 

You had a doctor’s appointment or needed to get treatment. The weather and your distance to the community meeting location made it difficult for you to join us. You had to work through your lunch break. Schedule conflicts happen.

This is why some LBBC programs are recorded, transcribed and posted on our website – so that you can listen to or read them when your schedule permits. Our LBBC Event Archive has an extensive listing of podcasts, presentations and/or transcripts of events from 2010-present.

Check out some of our recent podcasts and presentations: (more…)

Check Out Our Twitter Chat, #LBBCchat: Coping With the Financial Impact of Breast Cancer

June 25, 2014

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UPDATE, July 8, 2014: A transcript of our financial concerns Twitter chat is now available. Read the tweet conversation on lbbc.org.

If you read and related to our June 18th blog post discussing concerns about the financial impact of a breast cancer diagnosis, our Twitter chat,  Coping With the Financial Impact of Breast Cancer, is for you. Join us tonight, June 25, at 8 p.m. (ET) using the hashtag  #LBBCchat for an hour-long tweet chat with a panel of breast cancer, finance and legal experts to get answers to your questions and learn about

  • what insurance will cover, and how to navigate both hidden and visible costs of breast cancer treatment.
  • how breast cancer can impact your personal finances.
  • workplace accommodations and disability rights, and what you can do if you lose your job.
  • the resources available to help you ease the financial burden of medical bills.

Are you new to Twitter chats? Learn best practices for successfully participating in tweet chats.

Additional Resources

We offer many resources on financial concerns and breast cancer, including a guide, online content, our ask-the-expert series and podcasts and presentations of past programs.

Download or order print copies of our updated Guide to Understanding Financial Concerns.

Read our Financial Concerns content in the “Beyond the Basics” section of lbbc.org.

Learn about or apply for our Cis B. Golder Quality of Life Grant.

Check out the following from our Ask the Expert series:

Listen to and read these podcasts and presentations:

Discover additional information from these recommended resource listings:


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